Day 55
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Kris – Welcome to our support group; so sorry you have to be here. It sounds like you are your own best advocate which is so very important. Memorial Sloan Kettering is a great hospital. Attitude means so much and you seem to have a wonderful one! Keep us posted and search on the many threads on this website to find valuable information and answers to many questions you may have. Keep us posted. All the best – Nancy
Hi: I was recently diagnosed with cholangiocarcinoma. It is not located near the bile ducts, however, but has invaded 2 of the 3 hepatic veins and is wrapping around my vena cava. 55 days ago I had a gallbladder attack and the tumor was found during ultrasound. Since then I have changed surgeons. My first surgeon didn’t answer questions and wanted to operate. He gave me a 60% success rate. BTW, I am a 47 year old female. I didn’t like the odds. I am now with Memorial Sloan Kettering in NYC and am about to have the Liver Infusion Pump implanted. I am just starting to read these boards. I hope I chose correctly with this treatment. The hope is to shrink the tumor enough (it is currently 5+ cm) to become operable or for another treatment option to become available.
I have very recently started showing symptoms, but am confident that this was caught in time for me to beat this.
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