Decisions

This June will mark 4 years since my mother was diagnosed with ICC She was told she was in operable and given less than a year. Fortunately she was operable and had a resection, she followed up her surgery was six months of gemniside. Over the last four years she’s had a few reoccurrences and has also enjoyed many many months of remission. At one point she did gem/cis cocktail which I must say it was horrible for her. She also had stereotactic radiation six treatments she weathered that very well. Last fall when she had her newest reoccurrence she received typical radiation 30 treatments. That was the worst of all of the treatments. Her recent scan this week showed a couple small lesions that are new in the lungs. We have not met with our oncologist yet we are meeting with him tomorrow. I am working with cure forward and we are being possibly offered to participate in phase 3 clinical trial targeted towards her mutation… challenges it’s a blind study so I have the participants will be on a placebo. She would be monitored under this trial and if things are not looking good they will put her on the actual medicine in the event that she was placed on the placebo. I don’t have all the details at this time but that about sums it up.

Another option would be to ask our oncologist to put her on Keytruda A lady here in town is having an exceptional results with it it would require her doctor getting off label use.

And lastly I’m sure another option that will be proposed to us will be additional radiation to zap the new lesions. If we do this we will not be eligible for any clinical trials?

I am looking for anyone’s thoughts or input regarding the decisions that lie ahead of us…

Thank you in advance for your help and support.

*** ending this with good news mom feels great and just enjoyed a cruise with my father. She’s back to running!