Decrease in CA 19-9
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Hi Teresa,
Thanks so much for the update on your dad, and no apologies are needed from you at all.
I have a few thoughts on your dads chemo and taking a break, but they are only my thoughts and as my dad never had chemo I can’t share any personal experiences. I hear what you say about being scared of your dad taking a break from the chemo, I guess that is understandable. You say that the trial your dad is on allows a 5 week break so I’m guessing that taking a break will be okay. And considering what you say about your dad’s mental state right now, perhaps a break from the chemo so that he can have the visit with his family will do him a lot of good and wonders for his mental state?
He changes his mind daily as you say, understandable again. Is he looking to you for advice or guidance on this decision? My dad looked to me a lot for help with making his decisions about stuff and I always used to say to him that I would support him in whatever decisions he decided that he wanted to make. And I used to say to him as well that he should do what ever he felt was best for him and him alone. I know that none of this is easy Teresa, but we can only do our best for our loved ones can’t we and you are certainly doing everything you can for your dad.
How about speaking with the onc or whoever is running the trial and see what they suggest about taking a break and how your dad would get a big boost from spending time with his family? As I said, these are just a few of my thoughts here and hopefully others will chime in soon with their thoughts as well.
Please let us know how things go here and what your dad decides to do as well.
Hugs,
Gavin
Hi all,
Am so sorry have taken a while to post Dad’s results. Have felt so terrible for what Pam and her family are going through that didn’t fell like postings.
Dad original scans showed some non specific soft tissue along the hepatic artery. Also he has some lymph node disease. His recent scan conclusion states; sites of soft tissue abnormality remain relatively unchanged . However the report also states that some of the lymph nodes show cystic necrosis which our Onc thought is tissue death possibly due to chemotherapy.
I know this is good news however must admit was hoping for some shrinkage (even though maybe 6 weeks is a little early????)
My only concern now is dad’s mental state: he is becoming more and more down as he realizes this is not like other cancers where there is a set number of cycles.
I think he wishes to return to his home town in Italy in August and now I am wondering if in August we should organize a chemotherapy break (the trial allows a 5 week break) so he can have a visit with his family whilst he feels well.
Naturally I am scared of having a chemotherapy break but if he wishes to do it ( his mind changes daily so hard to tell) I will try and organize it.
All advice regarding chemotherapy breaks?
I’m sorry to hear about your mum Ilias. I hope that her onc can get to the bottom of what caused your mums CA to jump so quickly. Please remember that we are here with you and loads of positive thoughts are coming your way. And pleas let us know how your mum gets on.
Hugs,
Gavin
Ilias…..my heart is with you. Tons of love and good wishes is heading your way. Please stay in touch.
Hugs,
MarionGod Bless Rain.
please pray for mum…not well…ca19-9 jumped significantly…we had to wheel her by wheel chair to see onc today…feel so much for her.
have safe trip…i hope only the best for your father
Lou
Rain….based on the lowered tumor markers, I expect good news coming your way and for you to enjoy and safe trip to Italy. The little ones will be thrilled to have their Mommy back.
Please, keep us posted.
Hugs,
MarionGood to hear Rain that your dad’s CA 19-9 levels are dropping and my fingers are crossed for the best possible scan results on Monday. Loads of positive thoughts coming your way and please let us know how he gets on.
My best wishes to you and your dad,
Gavin
Quick update on Dad.
His CA 19-9 went down to 51 after two cycles of chemotherapy.
He had his CT scan on Thursday and we get the results on Monday afternoon – please wish us luck.I am going back to my two young kids in Italy on Wednesday and would hate to leave if we get negative news……
Al the best
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