Dendritic cell vaccine therapy

Thanks for share very informative detail…..

Dear Sara,

I don’t check in on this site very often now. Mainly because it just hurts too much.

I just wanted to respond to you. I feel very emotional having just read your posting. It is very likely that my Dad is the donor. I feel very comforted knowing that you are the recipient and I know that my Dad would feel the same way. My Dad gained strength from this online community and it helped him to not feel alone in his fight. If he could do anything to help gain insight into this disease and progress towards a cure then I know that he would have wanted to be in there.

Thankyou for sharing this information and I want you to know that I am thinking of you (and all my other friends on this site). Lets beat this beast.

love to you all,
Jules

Sara,
It is wonderful hearing from you. Are you planning on continuing with Dr. Nesselhut’s Dendritic Cell Therapy, or are you considering other forms of treatment? Again, so glad to have you back on the site.
Marions

thankyou Helen for posting a link to the charity you have set up in memory of Alan here in the UK – I noticed that you have a link to DC therapy and I thought it might be helpful to post it here under the DC thread as it explains clearly how the treatment works. It is also very encouraging to hear that this treatment is being taken seriously at a respected cancer research institute here (we travelled to Germany to get this treatment for my Dad and I believe that it prolonged his life significantly without having to suffer harsh side effects). Anyone interested in this treatment may also be interested to investigate the immunotherapy research unit at St Georges Hospital, London.

Here is the link:

http://www.ammf.org.uk/pdf/Report.pdf

ps – Sara, wishing you every success with your treatment
very best wishes, Jules

I went to Dr. Nesselhut’s clinic for treatment last month & this month. I have it from a very good source that they no longer have a working relationship with Dr. Gorter. I gathered that part of the problem was that Dr. Gorter was too busy with other stuff and wasn’t giving his patients regular treatment.

At any rate, Dr. Nesselhut’s lab in Duderstadt does all the dendritic cell work for Dr. Peters in Gottingen, as well as Dr. Gorter. Also, Dr. Nesselhut has treated far more patients with dendritic cell therapy than have the other two doctors. If you’re going dendritic, Nesselhut is your man.

From Gottingen train station there is a bus that takes you to Duderstadt in 1 hour. For 60 Euros or so, you can stay at a very nice b&b that gets a lot of Dr. Nesselhut’s patients: Ziehr ! Stuck: http://www.ziehrstueck.de/

Sara C.

Jules,
It sounds like Dr. Nesselhut is doing a great job with your Dad. I’ve been trying to decide which clinic to go to. Dr. Nesselhut sounds like the most remote of the three clinics I know of – the others are Dr. Gorter in Cologne, and Dr. Martin in Gottingen. I would fly into Frankfurt. I’m guessing your Dad heard something good about Dr. Nesselhut, because Duderstadt seems to be off the beaten track.

I think I committed something of a gaffe in asking Dr. Chang in New York how he is able to administer the injection – whether it is approved for use in the U.S. He said:
“… We rather not discuss the details or legal logistics
of dendritic treatment as might be performed in the US
and would rather discuss this with our patients who
are seriously interested in person. … “

Sara C

we went this week to Duderstadt for another treatment. The last 2 treatments have been a different protocol – Dr Nesslehut has devised a superior technique – although the side effects last a little longer (fever on and off for about a week following treatment). My dad has been moved onto ‘more experimental’ protocol following the development of ascities which indicated disease progression. The ascities has stabilised – there has been no more fluid accumulation since the last drainage (carried out in Germany). Dr Nesslehut was very pleased to see this and indicated that the new protocol appears to have been effective. My Dad will soon be having a scan which we hope will confirm this. Unfortuantly my dad continues to suffer with a persistant cough which has become very debilitating for him, disrupting his sleep and even ability to eat at times. We suspect that this is caused by an infection, we are going to obtain cultures for analysis to determine the right antibiotic to treat this. My Dad also uses a portable nebuliser at home which provides short term relief.

Just thought I would update you all – so far the DC therapy seems to be keeping things stable, I know how much all of us are waiting for a breakthrough in the fight against this dreadful disease.

Jules