diagnosed with cholangiocarcinoma in 2007 recent ER trip

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  • February 13, 2011 at 2:15 am #44088
    lainy
    Spectator

    Dear Debrah, please do not every feel guilty for being a survivor. In the beginning when Teddy did so well, honestly I felt the same way bot others encouarged me to write because so many need to hear good news. What is family if only to hear the bad. Family needs to also celebrate the good!

    February 13, 2011 at 1:36 am #44087
    debrah
    Spectator

    Thanks Kate! I have been around for a while but have not been on site too much =( Like many it is so sad and sometimes I feel guilty to be doing so well when others are not. I was dx’d in 3/2007 and as of today am doing just wonderful..Thank God! I will try to check in more often and let others know we can survive this. I certainly am not anyone special but have been blessed with clear scans for almost 4 years now. I agree it would be hysterical if the tattoos showed up….I still cannot believe I actually got one! It hurt like crazy but nothing like what I had already experienced with cc. I am trying to get up the courage to get another bird added to my’ branch of life’. hugs, deb

    February 12, 2011 at 8:07 pm #44086
    katja
    Member

    Deb,
    It’s great to hear your story, I haven’t spotted you before. I LOVE your tattoo! It’d be so funny if tattoos showed up on scans…
    Glad you responded well to the antibiotics etc and good luck for the future.
    Kate

    February 11, 2011 at 11:11 pm #44085
    debrah
    Spectator

    I did and I will =) as soon as I can it might take a little bit ok? We should chat someday =)

    February 11, 2011 at 4:51 am #44084
    marions
    Moderator

    I couldn’t agree with you more. Deb, I have sent an e-mail to you. Did you receive it?
    Best wishes,
    Marion

    February 11, 2011 at 4:12 am #44083
    debrah
    Spectator

    I know Marion…such a dork huh? =) I almost ran back in but decided I will see him again next month and who knows maybe I can have another? This is called a midlife crisis. You know after surviving this cancer….I feel I can do so many things I would never of considered. I had no idea he was an artist….however that man is next to God for me….nothing should surprise me right? <3

    February 10, 2011 at 10:41 am #44082
    marions
    Moderator

    Deb…and you forgot to show him your tattoo? Dr. Jenkins is known to be quite an artist; he would have been a great critic of the artwork surrounding your scar. I am glad to hear that a bug caused your problems. Funny, the things causing us to be happy!!!
    Good luck on the upcoming MRI and thanks for popping in on us.
    All my best wishes,
    Marion

    February 10, 2011 at 3:01 am #44081
    lainy
    Spectator

    Hi Debrah, that is all wonderful news, keep up the good work and I am hoping also for a great MRI. Good to see you again!

    February 10, 2011 at 1:56 am #44080
    debrah
    Spectator

    Good news…..Dr Jenkins feels I caught the tummy bug from my family and with the way I am re routed that the ‘bug’ traveled up the intestines directly into the liver and infected the liver bile itself. Let me tell you that if I ever see anyone with the tummy bug again I am heading for the hills with lots of antibiotics and bile thinners =) I forgot to show him the chickadee…dah He is setting up an MRI only because I should of done that a while ago…nothing to do with this episode and I have a feeling that will be good news too. MArion….Oh Dr. Jenkins smiled widely and sends his best when I mentioned your name and Julie was so happy she is sending HUGS because she says she always does =) I also wanted to let you know that I saw The Cholangiocarcinoma pamphlet displayed prominently at his office. Way to go!!

    February 9, 2011 at 11:40 am #44079
    debrah
    Spectator

    OH Marion….I will make a point of saying a big hello from you to the entire Lahey team! Julie included….she is wonderful! Have you met Maria at the desk? She is a crackerjack =) Dr Jenkins seems to have more and more young residents? training under him. What a wonderful gift to share…he is the best isn’t he? I wonder what he will think of the chickadee tattoo I have sitting on the scar as if it were a branch…my first real tattoo besides the radiation dots =) ouch =) If I get brave enough I want to have other birds perched on my ‘branch’ of ‘life’. Gotta get my son on the bus….hugs, deb

    February 9, 2011 at 12:43 am #44078
    marions
    Moderator

    Hello Deb…….how nice it is to hear from you. Being that everything has bee re-routed, so to say, it does not come as a surprise when occasionally something pops up. You terrific response to the bile thinner and antibiotics is such great news. Please, give my love to the entire Lahey team tomorrow especially to Dr. Jenkins and the great Julie.
    Tons of good wishes are heading your way.
    Marion

    February 9, 2011 at 12:08 am #4298
    debrah
    Spectator

    It’s been quite some time since I have visited the site. I am heart broken to learn about Kris’ passing =( Kris, Jeff and Peter have been my inspiration since the beginning. That being said it makes me even more nervous that after almost 4 years of clear sailing I ended up in the ER last week with the most intense pain (in my surgical site) I have EVER experienced! Thank God for diloudid. The doctors think it may have been an infection in the biliary tree and even a kink in the intestines . Whatever it was I see my surgeon tomorrow and will see what he thinks. You know when you have gone so long without trouble you do get a little nervous. I thought I was checking out the pain was so bad….severe bloating, vomiting and excruciating pain. Has this happened to anyone else here? And if so how are things going? I bet I find out that I have to lose some of the jiggle I may have gained over the last year huh? I feel 99% better after a week on antibiotics and bile thinners =) Hope to be able to catch up with the group and share good news =) hugs, deb

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