Diagnosed with metastatic cancer of unknown origin

I saw a female doctor with a complaint of slight distention just above my umbilicus and slight difficulty taking a deep breath. My regular doctor was out of town and I had a suspicion that I might have ovarian cancer (I am a family nurse practitioner and case managed cancer patients). This doctor took me seriously, did an abdominal x-ray and noted a marked elevation of my diaphragm and referred me for an abdominal/pelvic CAT scan which showed a 4.5cm liver tumor and two metastases in my abdomen below the liver. I saw my oncologist who referred me for a liver biopsy, positive for adenocarcinoma but it was thought to be a metastasis and not the primary. A second biopsy, this time through my stomach to one of the mets in my abdomen, was also adenocarcinoma. Further research showed no primary and presentation of my case at subsequent tumor boards and referral for a second opinion finally brought a diagnosis of presumed cholangiocarcinoma and a first course of cisplatin and gemcitabine was completed with no side effects except fatigue and some hair loss. It did not appear that the chemo diminished the cancers so it was decided to try a chemoembolization which was done on 9 July. A follow-up CAT scan demonstrated a lessening of the liver tumor and no progression of the mets. During this time I have felt exceptionally well and have kept up with most of my activities with no pain, nausea, loss of appetite or any other effect of the cancer. I think my doctors are surprised at how well I have done. One thing that I have done without instruction from my doctors was to take 10,000 IU of Vitamin D3. I was originally started on 2000 IU D3 by my neurologist for multiple sclerosis and was encouraged to increase the dose to 10,000 by a physician doing intensive research on D3 and diseases. I did have a level checked when I was up to 6,000 IU and it was still low normal. Other than that I have kept up a very healthy diet with fresh organic foods and get daily exercise, primarily walking.
I am now 9 months post-diagnosis and recently saw a radiation oncologist for consideration of further treatment with radiation. However, he felt that since my tumor was receding slightly and the mets were stable that I could take a wait and watch with sequential CAT scans every 6 weeks. To date, that is my story and because I feel so well I have to force myself to remember that I have cancer.