Discussion Group Help!

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  • August 3, 2008 at 3:39 pm #21297
    rick
    Keymaster

    Thanks everybody. Look for some changes coming up in the next few weeks.

    August 2, 2008 at 6:26 pm #21296
    tiapatty
    Member

    This is Patty Librarian. Rick, we need to talk, maybe by phone, to see if there is a way we can catalog the board, assign subjects to posts, like a library catalogs its collection. Right now I am too busy with arrangements for my mom but if this is possible, it might make the board more functional. I will do some research when things calm down for me.

    August 2, 2008 at 6:00 pm #21295
    lainy
    Spectator

    Carol, believe it or not when you make me chuckle that is a BIG help!!! I was thinking about the Caregivers as well. I am thinking also that some kind of buddy system (if someone wants it)would be nice. Like I know that there are maybe 4 in the area of Phoenix who have come on this site. We are a rare breed in more ways than on, yes?

    August 2, 2008 at 3:44 pm #21294
    carol58
    Spectator

    The caregivers spot now is all about after our loved one is gone. That is good and we will need that someday, but there’s so much in dealing with the day to day. Wish I could think of something to help other caregivers lives smoother and help with all the nightmares we encounter. OK, I’ll stop and think some more. Thanks!

    Carol

    August 2, 2008 at 3:41 pm #21293
    carol58
    Spectator

    Rick, thank you for all you do! Under Caregivers, would it make sense to have something like Financial Resources or Soc. Sec. Disability. I know a big part of our journey has included financial struggles over 14 months and I can’t be the only one. I’ve had to fight and learn along the way. Maybe something so it won’t be so hard for others. A caregivers venting place where we won’t be struck down with lightening if we utter a cross word about our loved ones? Oh, I forgot, I already do that anyway, don’t I? I’ll keep thinking.

    Carol

    August 1, 2008 at 5:59 pm #21292
    jeffg
    Member

    Hi Rick, Here is my suggestions. Keep or throw. I do think the site can be condensed a bit and maybe help on the confusion of what to post and where.

    Cholangiocarcinoma Foundation
    Forum

    From the Cholangiocarcinoma Foundation to you: Announcements and Updates to keep you informed

    Cholangiocarcinoma Foundation Calendar of events: Meetings, Symposiums, Studies, Podcasts, Fundraisers, etc.

    Suggestions/Ideas: If you have any suggestions or Ideas for the Cholangiocarcinoma Foundation, Please post here. What you suggest may be of great benefit to others

    General Discussion and Events…….Delete

    Website
    Forum

    Patient/Caregivers Sharing Current Events: Breaking local news, upcoming television specials, Podcasts, Events. Feel free to post times and dates and locations of any cancer related topics/events

    Features and announcments and Suggestions……delete
    Forum
    Treatments

    Combine… Research/ Clinical Trials

    Combine… Nutrition and Alternative Treatments

    Thought for the Day……. Nice but If not going to be used ……delete

    Thats about all I can think of today.

    Thanks Rick! P.S. I think a lot of people don’t realize that there are links on top that take them to the different places and subject matters that practically provides all infor you could possible get with the exception of personal experiences. If highlighting them links or somehow bring them links to members attention. Maybe in the Introductio area make note of above links. Just a thought.

    August 1, 2008 at 5:58 pm #21291
    sara
    Member

    Here’s my stab at it. I may have missed some threadsd that are needed. I just based this list off of the current structure, and adjusted accordingly:

    General
    o Introductions!
    o General Discussion
    o Thoughts for the Day

    Experiences
    o Surgery
    o Chemotherapy
    o Radiation
    o Pain Management
    o Alternative Treatments
    o Nutrition
    o Insurance
    o Hospitals
     MD Anderson
     Mayo
     Sloan Kettering
     UCSF
     Leeds

    August 1, 2008 at 2:48 pm #21290
    devoncat
    Spectator

    Like Lainy I need to think on this…

    August 1, 2008 at 1:43 pm #21289
    lainy
    Spectator

    Hi Rick, we are not ignoring your question, still thinking. Not sure how it would be done but how about dividing in to diagnosis areas but all related to CC.
    Like a site for those affected with Liver CC, one for Whipple, one for Pancreas.
    In other words the major parts connected with CC. How about a site for suggested reading material. The problem is people want to all come together and “talk” together as there is a need to be among many so the site doesn’t always work the way it should. You already have nutrition and chemo but they are posted mostly in Experiences. So maybe experiences needs to be broken down in to the subjects. I am rambling but trying to help. IF I think of anything else will let you know.

    August 1, 2008 at 3:47 am #1417
    rick
    Keymaster

    Hey there,

    We’re looking at restructuring the discussion group. The posts and forums are a little “hodge-podge” right now. People are posting all over the place.

    Any ideas on a great way to organize the forum topics?

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