January 27, 2007 at 9:40 pm #15083
thank you for your kind wishes.
Guarded expectations coupled with tons of hope for your treatments with Dendritic Cells.
Thinking of you
MarionJanuary 27, 2007 at 10:25 am #15082geoffMember
Thanks for your good wishes. Of course I’ll report the outcome of my DC treatment in terms of scan results (good or bad) but I wouldn’t want anyone else to base their own decisions on my actions and results.
Unless I achieve shrinkage (which would be great but is statistically unlikely) my DC therapy results (whatever they are) could be argued as inconclusive. I personally believe in the DC approach but I know others (eg my UK oncologist) who don’t and I also recognise the statistics. Anyway we’ll see.
Whatever you and your husband decide to do, I wish him the best.
GeoffJanuary 22, 2007 at 8:23 pm #15081
how wonderful to hear from you, and you are very right about the 200, and no, I don’t feel that you are putting holes in the transcript. I confused that number with another interview, and that not being with Dr. Gorter. I will take it out, it is misleading. I will however, ask Dr. Gorter to specify by number patients he has treated although, he most likely will include other cancers. I will post the answer probably by next week.
But now to you. I suppose the flu-like symptoms seem to vary from person to person. I am hoping so very much for these symptoms to be indicative of a favorable response.
We are still contemplating going to Germany for treatment although we are not quite sure of the date as of yet. My husband is ready to go, today.
Geoff, my fingers are crossed in a permanent position. for you to see some benefit with this treatment.
All the best
MarionJanuary 22, 2007 at 7:52 pm #15080geoffMember
That’s a fantastic post covering your discussion with Dr Gorter. Many thanks for providing us with those insights. I note that Dr Gorter states he has treated 200 CC patients with DC therapy, I find that number higher than I’d expect. I’m not aware of anything on that scale being reported – he refers to the ASCO conference of “2 years ago” and I guess that’s the 2004 conference at which (from memory) the total numbers reported were 17 (comprising CC, pancreatic, and gall-bladder).
Anyway I’m not trying to pull holes in your post, it’s really excellent and highly informative, many thanks.
PS I’ve now had 3 monthly DC vaccinations at Duderstadt, the 3rd included NDV, I have a 4th in early Feb, then I’ll have a scan early March. Each time I’m getting a fairly strong reaction with quite high temperatures.January 13, 2007 at 7:23 am #15079jmoneypennyMember
This is so fascinating, and I am hopeful that there is a great future for this research.
My stepfather participated in a clinical trial in the 80’s – he had lung cancer and was given 6 months to live. He lived for 15 years after that – right after doing the clinical trial using immunotherapy at Westchester Medical in New York, the cancer had disappeared — completely disappeared! It was one of those great miracle remissions you sometimes hear about, but we attributed it to the immune injections. I wish I could remember the name of the program and the supervising doctor now! He had the flu-like symptoms and stayed at the center for the weekend to be monitored, and didn’t even complete the full course of treatment. When the cancer returned 15 years later, they said it was a secondary cancer, unrelated to the first. Unfortunately, the immunotherapy was no longer an option because they closed the study, citing the fact that not enough people had successful responses – but I believed then and now that immunotherapy is underused and can produce amazing results.
Thanks for all the info- JoyceJanuary 13, 2007 at 4:09 am #333
This is a large posting.
NOTE: About 60% of patients demonstrated at least “a partial” response rate.
40 % did not respond at all. “Partial” not being defined
In terms of outcome:
A. ” operating under the premise that this can actually improve the immune system.”
B. ” the possibility of a longer life expectancy”
Q: Is one of the specific aims of Dendritic cell therapy designed to build up the patient
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