dizziness from xeloda?
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- This topic has 20 replies, 6 voices, and was last updated 12 years, 6 months ago by kris00j.
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May 18, 2012 at 11:49 pm #60482kris00jSpectator
Haha Lainy. No, more like spending too much time in Facebook and cc.org!!!
May 18, 2012 at 11:20 pm #60481lainySpectatorKris, could your left thumb be getting a blister from hitch hiking on a Harley? Sorry, again I could not resist!!!
May 18, 2012 at 10:33 pm #60480kris00jSpectatorThe redness was better today. Still sore and red, tho. The lines are very defined. So I didn’t call. I figure I have 3.5 days left. If I can bear with it, great. If it’s too much tomorrow, I’ll call the emergency number.
No peeling or blisters yet, but my left thumb DOES feel like a blister is trying to form (I’m left handed, BTW).May 18, 2012 at 10:25 pm #60479pcl1029Memberhi,
The redness of the hands are side effects of the Xeloda, and the doctors will cut your dose down a bit next time you will visit him. but if it is only 4 days left and you will have 7 days off the Xeloda.
If your situation happens to me like with 4 days left and no blisters and not like purple-red in color and not swelling,I will take it without changing the dose. But I am sure the oncologist will ask you to do otherwise.
God bless.May 18, 2012 at 2:43 pm #60478kris00jSpectatorMelissa:
They didn’t adjust the Xeloda. Once I started taking the preferred amounts of allergy pills, most of it went away. As long as I know when I lay down the room might spin, I’m prepared. It doesn’t happen during the course of the day, thankfully.
I hope your mother weathers the Xeloda well. There are some side effects that most people get. Of course, since I’m such a rare human being, I get the rare ones.
Actually, I do have some burning in my hands and feet. They are getting red and a little painful, but no blisters yet. I will call my onc’s office today to see if they want me to lower the dosage or just push on thru. I only have 4 days left in this final cycle. I hope to hear after my CT scan on 23rd that we’re a go for resection.
Good luck to your mom You can get more Xeloda information by going to Genentech’s website. And if your copay is high for this (mine was $350) you can get financial help for the pill. I don’t remember, but I believe it’s about $2000 a year or something like that.May 18, 2012 at 2:19 am #60477melissapalmaSpectatorMy mother started her first of chemo on Monday plus Xeloda so it is good to be more informed than what oncs can cover in a meeting. I swear they talk and talk and talk and it still doesn’t feel thorough enough, or I just can’t comprehend it all after a while. I take notes but Xeloda, for example, has like 4 or 5 side effects listed in my notes vs. the thorough ones listed here. Thanks for the rich information here!
Kris, I am curious, was the Xeloda dosage adjusted or how did they address your dizziness?
May 4, 2012 at 3:41 pm #60476kris00jSpectatorI just posted on another topic, but I agree. I don’t know how I would have gotten thru this past year without this site. All the support from moderators as well as members. Everyone trying to help based on their experiences.
And so much knowledge passes every day! I try to give my input where I have some experience, but I thank the moderators so much for passing on their knowledge and what they’ve learned from others on this site. It’s a wonderful thing you do.
And, Marion, from your lips to God’s ear that they find a cure for this soon!May 4, 2012 at 9:46 am #60475marionsModeratorKris…agree. There is something to be said for the power of the people; in this case the knowledge shared by those touched by this cancer. I can’t imagine for anyone fighting this cancer without the support of our board members.
This is what keeps us going because; one day there will be a cure for this disease.
Hugs,
MarionMay 4, 2012 at 5:06 am #60474wallsm1SpectatorGreat Kris!
Take it easy!
Susie
May 4, 2012 at 3:51 am #60473kris00jSpectatorAnd now it’s mentally better, too, Marion! Dr. K had me more than a little scared when she wanted the MRI because this was not a side effect. Well, I guess we can teach our oncs stuff, too, huh? THANK GOD!!!!
May 3, 2012 at 10:20 pm #60472marionsModeratorKris…fantastic news. Time to unlock my fingers. I must admit though that I expected for your “head” to be just fine.
Hugs and more hugs,
MarionMay 3, 2012 at 9:50 pm #60471kris00jSpectatorHi:
MRI was good. Nothing bad in my head…
My nurse said they actually learned something this week. 3 lesser known side effects of Xeloda. Yay me! Oh, joy!
At least they know now in case it happens again. I’m doing better. I doubled up on my allergy pills. I don’t take the full dose. Ears itch less. Dizziness is much better. Eye still blurry, but not as bad. So I’ll just wait it out. Much better than the MRI showing something bad!May 3, 2012 at 3:06 am #60470pcl1029MemberHi,
Thanks for your compliment, Marion, just like you said patient and caregiver share their experiences and knowledge to help each other.
God bless.May 2, 2012 at 10:40 pm #60469marionsModeratorKris….you did it Congratulations. Fingers are crossed for the absolute, best report.
Hugs,
MarionMay 2, 2012 at 10:36 pm #60468kris00jSpectatorI had my MRI today. It went “well”. I am not expecting to hear from Dr. Kemeny today but tomorrow if I don’t hear from her by early afternoon I WILL call.
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