October 27, 2010 at 2:04 pm #43199lainyParticipant
Hey, Lisa. Remember the “Little Engine That Could?” That is the CC Foundation.October 27, 2010 at 1:20 pm #43198lisaParticipant
The little Cholangiocarcinoma Foundation can accompish big things, I am sure of that! Thank you for all the great work you do.October 27, 2010 at 3:35 am #43197
Linda….Stacie had been and continues to be in touch with the Walter Payton Foundation. They are a wonderful organization. Although, they do not focus on our cancer they have however, contributed and and given support to various causes. I applaud their services.
MarionOctober 27, 2010 at 3:27 am #43196gavinModerator
Amen to everything that you say Marion! Well said and yes, together we can all change the world, or at least our part of it. Good rant and rave, and I like that, a lot!!!!
I hope that you have a good and safe trip to Philiadelphia, and I am looking forward to hearing about it.
GavinOctober 27, 2010 at 3:22 am #43195tiapattyMember
Yes, Payton had cc, there are posts about him and the foundation his family started, just put his last name in the search function.
PattyOctober 27, 2010 at 3:20 am #43194tiapattyMember
Wow, Marion, that is some manifesto, we need to start tacking it up on doors worldwide! We are a movement!
I am in awe of the people that make all of this magic happen here! How did we get such a bunch of capable movers and shakers? The strides that this foundation have made in a short time are impressive, thank you all for your hard work and dedication.
PattyOctober 27, 2010 at 3:06 am #43193
Thanks Lainy. I am sure that much has been left out and many efforts by some of the wonderful people have not been mentioned. I am in somewhat of a hurry preparing for tomorrow, but I am planning on a full report at the end of the year. Ugh…I hope that the storm has passed otherwise I am looking at a bumpy ride to Philadelphia.
MarionOctober 27, 2010 at 2:52 am #43192lainyParticipant
Nicely said, Marion and have a great trip!October 27, 2010 at 2:50 am #43191
Your ideas always have an impact. Please, remember to post in the “Suggestion” box otherwise, I am worried for threads will become lost. February is not too far off.
MarionOctober 27, 2010 at 2:43 am #43190
MargretOctober 26, 2010 at 11:32 am #43189mlepp0416Participant
Just yesterday I received a request in the mail to donate to Breast Cancer awareness and the suggested donation was $10.00. My comment was, “Ha, when they ask for a donation to a rare cancer like CC then I will be willing to donate. Why are they still asking for money for Breast Cancer research, why not something that does not get any research” then I tore up the request and threw it away.
How does one get someone to fund research for Cholangiocarcinoma? Do we need to have some famous people come down with this cancer before it gets any recognition?
MargaretOctober 26, 2010 at 10:16 am #43188lalupesParticipant
Roni – we had a poll last year & chose February (“a rare month for a rare cancer”). Maybe it’s time we started planning next February’s campaign? Kris comes up with wonderful ideas in the shower; I do hope she’ll soon be well enough to share more of her “thought showers” with us on the Boards.
Lainey – next time the nurse comes to help Teddy shower, could you ask him to focus on awareness ideas, too? Showers seem to be THE place to have them
As to Pink Fatigue, my mum is a 25+ year breast cancer survivor & I thank God for it – but we’re all SICK of pink. Fight cancerS please – not just one!!!
JuliaOctober 24, 2010 at 11:49 pm #43187ronidinkesMember
I want to have a CC month…and dedicate it to CC. how do we do this for awareness…..October 24, 2010 at 3:41 pm #43186linda-zParticipant
I agree SO much with all that is said here. Just the other day, someone had a TV on in our office lunchroom and a co-worker who’s mother had breast cancer and was cured was sitting there. A news program came on about breast cancer funding and research and I got furious. My co-worker spoke up and I explained that it was so wrong that my cancer is so rare that little is given to fund research for it (or other lesser known cancers), but that breast cancer is known everywhere and their campaigns are everywhere, that it seems to be “fashionable” to donate to the Susan B. Komen foundation. My co-worker started to say that so many get breast cancer, and because it is so curable now, that it helps when people are made aware of that. I said then all the more reason why people should donate to a CANCER fund that all cancers can benefit from and make people aware of ALL CANCER detection so that others can be helped more through research and get “more curable” results. He backed down and agreed. End of discussion.
Thanks Lisa for bringing this up. It was good to vent. By the way, haven’t there been a few well-known athletes or actors, etc. that had CC? I know Walter Payton had liver cancer, but didn’t know if it was CC or just liver disease.
LindaOctober 22, 2010 at 1:25 pm #43185lisaParticipant
What can we do to change all this? I think it has already started with Pink Fatigue. Everyone knows someone who is fighting or has fought cancer. We need to demand more money be spent on researching all cancers, and that the Pink Brigade needs to step up and share the wealth, so to speak. Why should only breast cancer patients be the focus when there are so many other cancers to fight? Lung cancer, liver cancer, bile duct cancer, pancreatic cancer : these aren’t sexy cancers but they are very deadly and thousands die from them every year.
I’d like to point out that you can live without a breast, but you can’t live without a liver.
I am grateful to the American Cancer Society and their sponsorship of Relay for Life because they are the ones looking into all cancers.
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