Doing well after 2 years!
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Three years cancer free after a resection!
I was lucky to have had my cancer caught very early by a wonderful surgeon who noticed an abnormality on my liver when he took out my gall bladder.
I’m posting because when I first visited this site I was looking for stories of survivors. Searching the internet had provided only dismal statistics and I was looking for hope. It was hard to find here, but it did exist.
I hope that stories like mine will give all who deal with this disease hope, an important ingredient in everyones’s survival.
Good luck to all.
Great and thanks…I appreciate your offer, Kris and Dianne. Would you please send an e-mail to marion.schwartz@cholangiocarcinoma.org including, name, address and phone number?
Thanks a bunch,
MarionI guess there are some problems in having a survivors site, but I sure am happy when I see postings like scargots who is 5 years post resection! Makes my day!
Marions, if you ever need volunteers to work at a symposium in Florida (in the winter) or MN (in the summer), I would be very interested in helping.Good point, Kris…so how do we go about it? Do we ask those people, post treatment, with a 3 months follow-up to submit their stories.
While I agree that all of us living with this diagnosis can consider ourselves survivors, I think we should maybe start at the point where chemo, radiation, surgery or some other treatment has “eliminated” the cancer for at least a given amount of time. Maybe 6 months? Or a year? That, to me, would be a “REAL” survivor story. I don’t consider myself a survivor yet: I am a cancer patient who hopes to be a survivor soon.
Yes, Randi, all of us are survivors. Then we should think of a concept as to how we like to proceed with the survivor stories.
Some of the best ideas have come from the members of this site. We can make this happen. Any thoughts?Just what I was thinking Marion. We are all survivors who live a day beyond a CC diagnosis whether it’s our diagnosis or the diagnosis of a loved one.
Your ideas are great. But, before we represent this to Rick we should work out the details. At what point does a patient become a survivor?
I would love to have an entire section for “survivor stories”. I for one can’t wait for 6 months so I can post on it. I think the stories that say how long you are a survivor and basic information are great to read. They give me hope. But they are hard to find sometimes, so I vote YES for a new section for these stories.
Hi Marion, I would be very interested in a section on survivor stories….it could give us all hope, eventhough I suppose it might also be a little discouraging? I think it could help people when they are trying to decide treatment options given them by their doctors. I may have decided to have chemo after my resection if I’d gone to such a site… I am now kind of regretting not having done so. Could it be a new heading under General Forums?
Survivor stories: we had started to collect survivor stories some time back and then (for numerous reasons) we shelved the idea.
What do you think? Should we start compiling again and where would you like to see the stories displayed?
Thanks a bunch,
Marion
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