Dr. Javle phone call

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  • #59488
    marions
    Moderator

    Mymommi….I can only agree with the others. Having to wait for an answer is well worth it.
    Fingers crossed.
    Hugs
    Marion

    #59487
    jathy1125
    Spectator

    Dear Mymommymylife-You have recieved great news!! I am a CC surviror thanks to a transplant, this is your best HOPE for cancer free. I did chemo and radiation to qualify, you will have about 3-4 months of treatment before going on the list and that will only happen if it doesn’t spread. Dr. William Chapman at Barnes-Jewish Hospital in St. Louis MO. is one of the top doctors in CC transplantation. Dr. Chapman worked with the Mayo Clinic to develop this trial.
    Please go to my FB page (Catherine Sims Dunnagan) and read my story and another Dr. Chapman transplant success story.
    Lots of prayers that your mom will qualify for a transplant. There is HOPE!!
    Cathy

    #59486
    lainy
    Spectator

    Dear Mymommylife, this is good news. One of our favorite words is surgery! Your Mom is in great hands and we will be most anxious to hear the next update.

    #59485
    Eli
    Spectator

    MyMomMyLife,

    It’s good that they are considering her for a transplant. CC patients who undergo transplant have 5 year survival rate of 75% to 85%.

    This article does an excellent job of explaining the transplant option:

    Curing cancer by replacing livers!
    http://www.ksat.com/news/Curing-cancer-by-replacing-livers/-/478452/9222812/-/gsrjbc/-/index.html

    Keeping my fingers and everything else crossed that your mom can qualify.

    #6590
    mymommylife
    Spectator

    Hi everyone, we saw the good doc this morning after my mom had an endoscopic u/s yesterday along with an FNA. We were finally given a diagnosis of adenocarcinoma in hilar lymph nodes. Mom was scheduled to start the wonderful cocktail of Gemara & cisplatin Monday morning but just got a call from him saying he spoke to the transplant board and wants us to meet another dr. @ Methodist next week . Also, that she will be starting radiation along with another chemo regimen but we have to meet with the transplant Dr. first.

    Honestly, I was ready for the chemo to start and to get the ball rolling for surgery and now this. Her mass is at 3 cm, with the blood vessels involved at the left and right bile duct. I would appreciate any advice and suggestions please, I’m very confused I don’t know if this is good news? Now the waiting game for the appt next week

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