November 24, 2007 at 5:27 pm #17775jeffgMember
Tom……. I agree with Jules, This site traditional has been providing information to all members on the different options available including different hospitals, surgeons, oncologist through significant research from significant and professional articles and publications. Individual members have expressed their experiences of which other members have drawn from; I would say this is first hand personal information freely submitted and to be shared. Dr. Canady came to light with an amazing media shock to us all. It’s amazing how much of an impact the media has over people. The bottom line is that they do not have the privilege to any information of any patient under the provisions of the Privacy Act of 1974 and the HIPPA Act of 1996, Therefore are unable to provide nothing more than public interest stories to boost their ratings. This one found it’s way to our friendly non -political and non controversial web site and has been creating tension for many members since. As Jules mentioned and I agree, enough is enough on this particular doctor. This is a sensitive and emotional time for members. This site is not a tool for individual members digging for information on a particular doctor. If you have a genuine interest in this particular doctor, make an appointment with him and determine first had for yourself. If other newly members want to share their experience and provide their personal opinion great. But we do not want or need to be requesting there personal information a week after supossively having surgery or at all, I would think a little tact and diplomacy applies here. All members by now have access to this doctor’s e-mail address, location, and telephone numbers. They now have the tools to make an informed decision. Whatever is voluntarily in time, provided by other members with undue pressure concerning this doctor would be surely welcomed. This post is soley my opinion and is not intended to demean or offend anyone and their beliefs. I just feel that enough attention to this media driven topic that gives “nothing tangable” is over. I will say one thing from personal experience, not even microscopic exploration can determine disease free of cholangiocarcinoma, Therefore, I still say hope is in the air for a cure as a surgeon can only extend life through resection and cortorizing vessels, and implanting stents, and other procedures, hopefully long enough for that miracle of a cure to arrive. I guess my opinion is let go of the media hype and wait to see if anything positive is voluntarily posted from members who may have used this surgeon’s services as we do for any other member having surgery with some other surgeon.
Jeff G.November 24, 2007 at 12:35 am #17774
First I would like to welcome you. I am glad to hear the good news about your mom. Please keep us up to date if you can find the time.
Also would like to hear from the 4 other families that went to Dr. Canady if possible.
TomNovember 19, 2007 at 3:11 pm #17773melody539Participant
My mother had surgery at MonValley Hospital one week ago by Dr. Canady to remove her Klatskin Tumor. He resected 40% of her liver and she is doing well, going home today; will start chemo/radiation in one week. She is 76 yrs. old. Dr. Canady is the most dedicated, passionate, caring doctor I have ever met. Just ask the other 4 families he did surgery on this past week, Katya’s dad included. WE ALL LOVE DR. CANADY!!! If anyone wants any info feel free to contact me.
A very grateful daughter, MelodyNovember 18, 2007 at 8:13 am #17772
Tom and Ron
By all means conduct research – I certainly did when I was considering who to go to to help my father, however I would say that it is advisable to only use reliable sources when researching – eg medical journals that the dr may have contributed to (ask him if he has co-authored any articles), I also talked to other Drs whose opinion I respected (eg when we went abroad for treatment I consulted with the head of the immunotherapy unit here at St Georges Hospital, London). Personally, I would not consider media driven reports reliable authority.
I hope this helps you in your decision, very best wishes,
JulesNovember 18, 2007 at 3:54 am #17771
I also had some of the same questions that you have raised. I truly hope that Dr. Canady is a miracle doctor that can help cure people of this terrible disease, but I also want those who are considering this drastic surgery to have both sides of the story with this doctor in order to make an informed decision. I hope we hear some good news from those members who are meeting with Dr. Canady. Those of you who have met with Dr. Canady, please post about your experiences. It will help everyone to hear your stories.
TomNovember 17, 2007 at 10:30 pm #17770ron-smithMember
I first read about Cindy several weeks ago on another site and my first thought was “Oh dear, this family are setting themselves up for a huge disappointment.”. Any of us who have been through this know that you cannot say you are cured, especially within 6 months of surgery. But not wishing to dismiss it out of hand, I googled Dr Canady and found all the reports about his time spent in litgation, arguments with his employers and his inventions. This caused me some concern because litigation is notoriously time consuming as are the processes required for new inventions. My final conclusions at that time were “When does this man find time to perform surgery and is his main concern the marketing of his invention?”
I thought that the interest in him would disappear quite quickly but this has not been the case and I can understand the reason people have seen Dr Canady as some type of miracle worker. But the more I think about it the more concerned I have become. None of the doctors I have met through my own treatments would in any way encourage or condone the claims being made about the surgery. I do not know if Dr Canady has done either but he must be aware of the publicity and the effect it has had but appears to have done nothing to give a more balanced view. It does occur to me that, at a time when Dr Canady is in dispute with his current hospital about having his privileges revoked, it cannot be doing his personal standing any harm to have a large number of potential new patients, from all round the world, clambering to have consultations with him.
RonNovember 17, 2007 at 9:10 pm #17769
I think you’re taking my post the wrong way. I just wanted all ( Good or Bad ) information in one area so we can read it instead of searching. No witch hunt intended here so I hope you’re not taking it that way. I am sorry if more positive news about Dr. Canady has not been posted but I am sure there is some to come……..
Trust me when I say this, we ALL hope this Dr. can do what he says he can. I just want some positive news before I give the thumbs up to my dad and tell him in my opinion, this guy can do what he says he can. I give my advice based on facts, and the fact that this doctor has had his privileges revoked in more than one hospital raises a red flag for me. I know that he is viewed as the last hope for many people, and when you have no other options it is easy to overlook the sort of research that should be done on a surgeon prior to making such a serious decision.
My wife and I hope that Dr. Canady can help cc patients, but we are not willing to make the choice of sending my father to him without doing our research first. We do not dispute the fact that Cindy appears to be doing well after Dr. Canady’s surgery. I think everyone on this site who is aware of Dr. Canady has read about Cindy, but we just feel that we need more information before making the choice of using Dr. Canady.
The way we finally looked at this was to ask ourselves if we were looking for a surgeon for one of our children, would we feel confident sending them to this doctor if we had a choice of surgeons? Unfortunately, the answer for us was ‘no’ with the information that is available now. We hope that more positive news will arise and if it does, we may adivise my father to use Dr. Canady.
We wish the best for everyone. This is a personal decision for each person and we only want to make sure that all people have the current facts and don’t have to spend time searching for them. I have spent much time researching treatments for this disease and feel that if I find information, why should someone else have to spend their time to find the same information? It is much easier to have these links posted in one place and if I find some positive news, I will definitely post that too.
TomNovember 17, 2007 at 8:43 pm #17768
Just to clarify my previous posting:
– I don’t think that it is perticulary helpful to publically vilify Dr Canady (posting links to media reports infering that his professional integrity is in question amount to this).
– I am thinking perticulary of all the patients and carers searching this site for hope. I don’t see that this tittle tattle has a place on this website (I am referring not just to this thread but also to other postings/threads referring to Dr Canady)
– I post on this board not as a lawyer, I post as a daughter of a cc sufferer and I know exactly how it feels to be given a lifeline – hope in the battle against this hideous disease. I wouldn’t knock that.
– I support informed choice not scandel and scare mongering.
JulesNovember 17, 2007 at 9:55 am #17767
I think that it is time to stop all of this. I think we have to be clear about the aims of this site – we all want to raise the profile of cc and to work towards a cure. (Please think of the patients on this site relying on us to carry this forward). We should not be put off from sharing hopeful avenues however we should be careful about the context in how we do this. (Please see some of my dad’s postings re Prof Lodge/surgery – we were clear to warn of the risks involved with surgery). Nobody is a miracle worker. This is a difficult disease, however Dr Canady is able to offer hope to many patients.
As for the privileges system issue – correct me if I am wrong, but is this not a system that is clearly open to abuse and exploitation? we have all come across professional rivalry.
JulesNovember 17, 2007 at 5:56 am #17766
Here is a new article dated Nov. 15 about Dr. Canady’s suspension from surgery.November 14, 2007 at 7:41 pm #17764cherryleParticipantNovember 14, 2007 at 7:00 pm #17763popebaillieMember
does anyone know if Dr. Canady has an email address????? ThanksNovember 13, 2007 at 7:23 pm #17765saraMember
The following are some external links, in chronological order (most recent posted first).
KDKA stories featuring Dr. Canady:
http://kdka.com/local/cancer.doctor.surgery.2.564732.html (Story regarding temporary injunction on the suspension of Dr. CanadyNovember 13, 2007 at 6:35 pm #866
Hello everyone. I thought this would be a good idea to gather all information, good and bad on Dr. Canady here in one spot. I thought 2 of our members were scheduled for an appointment with him this week. I hope they will find the time to post the results from those meetings so we can all read them.
I have read the comments from Truth4u and take them seriously as many other have posted here also, some good, some bad.
Here is a link to a posting on Hopkins website.
Hope the information is helpful.
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