Efficacy and Safety Study of PDT Using Photofrin in Unresectable Advan

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  • April 15, 2014 at 5:55 pm #80722
    marions
    Moderator

    Leslie….please keep us posted.
    Hugs,
    Marion

    April 15, 2014 at 1:55 pm #80721
    ingenue
    Member

    Thanks to all. Yesterday my husband had a low grade fever and was looking pretty yellow. We go for labs today, but stenting may not be that far off. I will send our Doctor the trials info and see what he has to say.

    April 15, 2014 at 1:15 am #80720
    marions
    Moderator

    Leslie…..In addition to what Kris has mentioned, you would want to discuss your thought with the physician.

    The below link allows for a comprehensive overview of clinical trials:
    http://www.cancer.org/acs/groups/cid/documents/webcontent/003006-pdf.pdf

    The clinical trial mentioned in Gavin’s posting is to evaluate the efficacy of Photodynamic Therapy given at time of stent placement. This would then eliminate an additional intervention via a radiology appointment.
    Hugs,
    Marion

    April 14, 2014 at 8:14 pm #80719
    kvolland
    Spectator

    Leslie –
    One approach you may try, using the link about that Gavin posted, scroll down toward the bottom, there is a spot for recruitment and it give the names and contact information for the two places they study is recruiting at (when it starts). There are email addresses for both, I would email them and see what conditions are needed…..may be able to answer some of your questions. Most studies on the http://www.clinical.gov site have some sort of contact information. I would think it would vary from study to study.
    Hope that helps.

    KrisV

    April 14, 2014 at 6:45 pm #80718
    ingenue
    Member

    Hello Gavin,
    My husband was diagnosed with locally advanced cholangiocarcinoma in January of this year. The first 6-week battle was to gain control of the unrelenting pain he was enduring. Once that was achieved, we started Chemotherapy. He has finished two rounds. Once the third round is completed, they will do a CT scan to see how well the chemotherapy is working. However, recognizing that chemo is not particularly effective, I started searching out clinical trials. Dr. Kahaleh’s PDT trial is of particular interest. However, since we live in Canada, I’m not sure what to do. How does one get into a trial? Can you participate in a trial even if you don’t live in the centre where the trial is being conducted? Does anyone have any insight/experience they could offer? Please advise. Thanks

    March 11, 2014 at 7:02 pm #9653
    gavin
    Moderator

    Efficacy and Safety Study of PDT Using Photofrin in Unresectable Advanced Perihilar Cholangiocarcinoma.

    http://clinicaltrials.gov/ct2/show/NCT02082522

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