November 10, 2015 at 9:53 pm #90443gavinModerator
Thinking of you all right now as you go through this time and hoping as well for comfort for everyone. Please do not knock your self about any of the decisions you all have to make or have made throughout all of this. I know for sure that the decisions that you make are so right for you both. Please know we are here for you.
GavinNovember 9, 2015 at 11:49 pm #90442darlaParticipant
My thoughts and prayers are with all of you. Hoping he can be kept comfortable and pain free and you two can share some quality time together.
DarlaNovember 9, 2015 at 11:17 am #90441middlesister1Moderator
You and your family are in my thoughts and prayers. I’m glad you were blessed with the years and grand kids. And, I hope all the time you share together now also brings more comfort and peace.
CatherineNovember 9, 2015 at 4:17 am #90440sdaigreMember
Thank you Lainey and
Marion for your kind words. Our transplant team has said that it would be about 3 weeks and a gentler way to go. Hoping for kidney failure actually. I will let you know as it may help someone else. Also wanted to tell you that Dr. Javle at MDA is our oncologist and I am so glad that his research is supported by the foundation. He is wonderful and because of him we have had 5 more years and the blessings of two grandchildren.November 5, 2015 at 4:59 pm #90439marionsModerator
Susan……I don’t recall a posting addressing the halting of anti-rejection drugs and the subsequent time line for liver failure. Will it precede the symptoms of disease spread? Heartbreaking question, Susan. I but I don’t believe for anyone to argue with your decision to move forward on your own terms. I hope and wish for someone with similar experience to come forward and help you out.
MarionNovember 5, 2015 at 2:27 pm #90438lainyParticipant
Dear Susan, Sometimes stopping treatment is the kind and right thing to do.
It was in my husband’s case. When Teddy reached this point his ONC offered him Palliative Chemo. T asked him, “if I was your father what would you advise me to do?” The ONC said it becomes a choice of quality time over quantity. The quantity would be adding maybe a month to life. Teddy chose quality. He felt he had been through enough and for what? Too buy one more month? It is a very personal decision although most of our members seem to choose quality. I believe that knowing what to expect really helps to face the end of the journey and it becomes less scary which is why I love that Marion has posted the 10 Signs permanently although anyone who would like to can still email me and I will send the list out to them as well.
I am wishing for your husband comfort and many loving moments for you to remember along this Journey.November 5, 2015 at 5:08 am #11856sdaigreMember
This is strange but we are stopping anti rejection meds . Cholangio is back and we are at peace with very immeninent death. Choosing to not ride out the spread of the cancer. Anyone have any thoughts.? Not to continue the fight, please, but timing or experience. Our doctors are supportive and have answered questions but wondering if others have chosen the same path.
- You must be logged in to reply to this topic.