English newcomer

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  • June 22, 2011 at 10:31 am #51163
    juliedb
    Member

    Hi Cindy,

    2 English newcomers on the same day!

    So pleased to hear that your Dr caught your CC early. We weren’t so lucky and my hubby was fobbed off with ‘anti-acid’ and ‘stomach lining’ tablets for several months and we only got a diagnosis after he insisted on paying privately for a scan!!

    Have a look at the Penny Brohn Cancer Centre website. They firmly believe in the power of your own immune system and their courses give you all sorts of ideas to help boost it.

    Julie

    June 22, 2011 at 6:07 am #5330
    cindynoble
    Spectator

    DEAR ALL
    It is wonderful that this website and discussion board exists. It is such a shame we have nothing like it in England as treatment seems different here.

    An astute doctor caught my cholangiocarcinoma early. I had a major operation for T2 Bile Duct Cancer. The gallbladder was removed also but liver found to be healthy. Path results after op revealed unclear margins and perineural invasion. However, a PET Scan showed no growth or spread since op.
    In England, we have no definite adjuvant therapy. Only BILCAP Trial is offered. Here a computer randomizes you into a group that gets capecitabine or a group that gets only observation. I am awaiting the results of this randomization. Whilst I wait I realise just how lucky I was to be caught early. That now is the time for me to use the ‘power of Cindy’ and get my immune system back on track.

    Does anyone know if CCC tends to come back? Or can I now put this behind me and move on?

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