August 17, 2006 at 5:30 pm #14222jberg597Member
My husband was on Gemzar and Oxaliplatin, given a day apart from each other.August 16, 2006 at 7:01 pm #14221marionsModerator
Thanks for your answer. We are in the process of working through this issue. Would you be able to share with us the chemo protocol used with your husband?
MarionSAugust 16, 2006 at 3:35 pm #14220jberg597Member
My husband had a liver resection October 2005. The Dr. felt he got clear margins but there was some lymph node involvement. All Drs. involved thought that chemo after surgery was a must. I agree with Stacie. The Dr. wanted to make sure that they got anything microscopic before it turned into a problem. Post-op was difficult but manageable. Even though my husband healed well from surgery there is still some minor abdominal discomfort 10 months later. The Drs. believe this might just be scar tissue. Our best to your husband.
JoyceAugust 9, 2006 at 1:20 am #14219nettieParticipant
Nov 17 2004 (1 month after my wedding) at 29 years of age I had a Klaskins tumor removed along with 75% of my liver, bile duct, galbladder and a bowel reconstruction. I did not receive any chemo or radation afterwards and now it is almost two years post op & I am doing super My liver functions are almost perfect (they tell me that they will always be a little higher) my thyroid levels are perfect (I have hypothyoridism) & I feel better now than I have in 6 or 7 years. The only thing that was a negative about my surgery is that I have a hernia on my right side about the size of a honeydew. Any comments about thyroid connection to cancer ???May 23, 2006 at 8:53 pm #14218stacieMember
You might want to read the “in remembrance” section. You will find a website there of a young women who had surgery and then did not have chemotherapy afterwards, it may give you some questions to ask your surgeon and some things to think about.
None of us have rock solid answers here or this would be a board for all the cured people who had cholangiocarcinoma. But I can tell you that every surgeon, every oncologist and every interventional radiologist we spoke and are speaking with (not just a few) all said that with cholangio chemo has to work. Whether you have surgery or not, chemo has to work. Particularly, the surgeons who we consulted with said, you have to do chemo afterwards just to make sure. One particular thing that two surgeons told us was that if it comes back after surgery it comes back with a vengence. If you are a candidate for surgery and the surgeon thinks he can get it all, I would do the chemo just to make sure all the seeds get it too. What they can’t see when they go in is the problem.
This is just my opinion and I know some people are trying to get the cancer without chemo, either way, you’ve got to get every bit of it.May 22, 2006 at 11:09 pm #137marionsModerator
My husband is scheduled to undergo liver resection within the next two weeks. Two surgeon believe that a resection is possible whereas two others would not consider such a procedure. Naturally, I am worried and confused. Fortunately, this site has been so very helpful to me especially since I found the name of the surgeon while reading the cc site. Any tips, hints, what to expect other then what has been postet already? Where does the survival rate come in? Where does the 20 to 30% come from? One of the surgeons did not recommend chemo afterwards whereas the other one did? Any answer will be greatly appreciated.
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