Discussion Board Forums General Discussion Experiences with Irinotecan (folfiri)

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  • #85167
    blodynbach
    Participant

    Thank you Gavin and Snowbird.

    #85166
    snowbird
    Member

    blodynbach….. the Irinotecan did not affect Ron’s appetite at all, so hopefully this will be the same for yours. :-)

    #85165
    gavin
    Moderator
    #85164
    blodynbach
    Participant

    Thank you Snowbird, so anxious about this next step, hubby down to 60 kg already and worried the drug will affect his appetite even more. Feeling hopeless : (

    #85163
    snowbird
    Member

    Of course everyone reacts differently but I can tell you how it affects my husband. He gets Irinotecan every 2 weeks in his port. The side effects have been fairly tolerable. He experiences a constant drippy nose and watery eyes. It also knocks his hemoglobin and wbc count way down. In order to raise his wbc count, 2 days after the Irinotecan I give him a shot of Neupogen for 3 consecutive days. These shots have worse side effects than the chemo. … horrible headaches, muscle pain, chills and sweats, wish last about 4 or 5 days. He seems to get the worst of all possible side effects no matter what drugs they give him.

    In addition to the Irinotecan, he also gets FUDR and Mitomycin in his HA I pump. But the Irinotecan was added later so we think we know what causes each side effect….. for him anyway.

    Good luck with treatments!

    #85162
    marions
    Moderator

    You are so very welcome.
    Hugs,
    Marion

    #85161
    blodynbach
    Participant

    Thank you Marion, much appreciated!

    #85160
    marions
    Moderator

    Until others have a chance to respond to your question I thought to pull up some previous discussions pertaining to Irinotecan.
    http://www.cholangiocarcinoma.org/punbb/search.php?search_id=91383178
    Hang in there, a tidal wave of good wishes are heading your way.
    Hugs,
    Marion

    #10667
    blodynbach
    Participant

    Hi
    My husband completed 12 rounds of radiotherapy last Monday supplemented with 5fU which finished today. Tumour markers are down from 5000 to 3000 which is positive. radio continues to work for a few more weeks so he won’t be scanned for another month to see if primary tumour has shrunk. He had 3.1 litres of ascites drained last Friday, what a relief, they will monitor this. Onc wants to try Irinotecan (Folfiri) now. My husband will decide by next Thursday whether to try it, he just wanted a week free of all treatment. Does anyone have experience with Irinotecan? Thank you.

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