May 12, 2008 at 1:19 am #19896
Barb … who’s memory is missing? We still have our memories just got to google the information sometimes.
Jeff G.May 12, 2008 at 1:14 am #19895
hi barb, thanks for the great advice! I do have another question though, I saw you wrote about not having such a good memory….i certainly can relate which leads to my question: Is it true that the chemo I had can effect my memory because it is awful! My eye DR said the significant decline in my vision may also be a result of the chemo. I swear going senile and blind is not a my choice of a fun time. I am still trying to use my MANUAL treadmill…it is kinda dangerous either it is too fast or suddenly stops..i will need to look on line for the nordic trac direction…..happy mothers day to all the moms deb i.May 12, 2008 at 1:08 am #19894
wow mr clean…do you happen to have any extra energy…my house is looking a little messy lately.. your wife must love to have such a helpful husband…i am happy that you are feeling well and strong keep up the good work!!!!May 11, 2008 at 7:37 am #19893
thanks jeff, mr. clean was the name i was searching for. oh wellllllll, i don’t have much memory left.
barb hMay 9, 2008 at 1:21 pm #19892
Deb, Mr. Clean with the bald head like mine Ha!
Jeff G.May 9, 2008 at 7:00 am #19891
about that treadmill, mine starts off really slow, around .6 mph. it’s so slow that i have to boost it up right away or i would get more exercise just walking walking through our home. perhaps there is some way to decrease the speed on yours. were you able to get any literature about it? if not, perhaps you can find some info on line or by calling the manufacture. it’s amazing that someone gave away a treadmill and hopefully you will be able to use it without getting injured. be careful.
also, with having young children i would think you are almost on a constant run. anyone battling this disease with young children to bring up should be wearing a diamond crown.
barb hMay 9, 2008 at 6:52 am #19890
thank you for posting about joe’s walking progress. you gave me the kick start i needed. i finally got myself back onto my treadmill today. although, i did have an excuse for sometime as i had vertigo for weeks and high blood pressure. now, i am better and actually taking a 6 week vacation from chemo. it scares me, but it may be the chemo that’s causing some of the problems.
good luck to you and joe. he’s fortunate to have a trained nurse and loving wife to help him. from your postings, it sounds like he knows how fortunate he is.
barb hMay 9, 2008 at 6:49 am #19889
you remind me of that old commercial ………geez, i can’t remember his name…but, he went through a house like a white tornado.
it’s great you are feeling so energetic, especially with all you’ve been through and continue to endure.
i’m thrilled that i can actually read and post now that my head has stopped spinning.
thanks for all your contributions.
barb hMay 8, 2008 at 6:00 pm #19888
Feeling a lot better now. I did cut back on lasix med to one every other day. The doc won’t know if no one tells him. Ha! Still eating like a pig. Vacummed the whole house today. Did 4 load of washing ,dried ,folded and put away. Rotated and flipped matteress on bed. I find I sleep better when I do that. Nuts ain’t I? Watching my grandson today had ear infection so no school. Mowed the front lawn and trimmed. Backyard will have to wait a few days. Will have chemo again in about three weeks if counts continue to rise and look good. Glad to hear you are exercising does wonders. If I don’t stay active, oh I get so bogged down. Ta Ta for now! Hope your feeling better as well?
Jeff G.May 7, 2008 at 11:29 pm #19887
that is absolutely amazing that you hasband is walking so much…my surgeon had also said that walking is the best exercise. I actually just got a manual treadmill over the weekend for free from craigslist.com My first few attemps on it have been a little scarey…almost flung myself over backwards. I will need some practice Thanks for the encouraging words best of luck to you both debMay 7, 2008 at 5:21 pm #19886maryanne80Member
Joe has had cc diagnosed for almost two years now and has just started conventional chemo after trying alternative which was good but just got too costly. His new oncologist saw him in the hospital when he had sepsis and we really liked him. When we saw him in his office the first time last week he said he wanted Joe to walk two hours a day. Joe was hardly walking in the house back and forth to the bathroom and was even weaker after being in the hospital with the blood infection and internal bleeding. But he told the doctor he would try. The first day he walked 6 minutes on the treadmill and had to stop. Then he did 6 more minutes. That was it for the first day. The doctor promised him that if he woud walk each day til he saw him the next week he would feel much better. Joe came home from the hospital with about 15 pounds of fluid in his abdomen which I thought would have to be drained. No, it went away by itself. He walked probably less than a half mile each day until Monday when we went back to the doctor. The doctor asked him specifically how much he had done. Then he said he wanted him in 8 weeks to be able to run 8 miles. Of course that was unrealistic, but Joe admitted he was much stronger after trying for the first week. So yesterday we walked for a half hour outside (it was a beautiful day). Before Joe started walking, he was sleeping about 6 hours during the day in two hours stretches. His blood counts were low. This Monday, his counts were better, he looks better and they were able to start chemo. Now I am not telling you what to do but Joe thought he couldn’t possible walk but once he started he realized he could do some. Don’t know if you have tried walking but it has made a difference with Joe. He even went without a nap all day yesterday which is a first. By the way, we have revised the doctors goal to 3 miles in 8 weeks. Of course we are older and don’t have to run around after kids. Maybe that gives you enough exercise but I think getting your blood pumping helps pump out the toxins in your body. Hope this helps some. I love reading the advice and things that worked for other people. I am the caregiver and Joe never gets on the site but it gives me lots of hope and help. God Bless Mary AnneMay 7, 2008 at 1:00 am #19885pderatMember
Deb-the naturopathic doctor gave Dave some L-carnitine a supplement that is supposed to help with fatigue as he has terrible fatigue all the time. I really push him to keep hydrated too which can make a difference. They wanted him to try ritalin, but he said no to that. Dave always says “what good are your friends if you can’t use them”, so call up and enlist help as sometimes people don’t know what to do to help until you tell them.
PatriceMay 7, 2008 at 12:39 am #19884
Jeff,first of all how are you feeling? I have not read much recently so I sure hope you a doing well. Now I’d like to thank you for your advice about my fatigue…I did get a chuckle out of your comment about depression and not wanting to admit it. We all try to be so strong don’t we? I will try drinking more water and see if that helps..maybe I am dehydrated..could explain all the leg/foot cramps I get over the last 2 weeks…. thanks again;)debMay 5, 2008 at 6:58 pm #19883
Deb … Along with chemo treatments a few other things that will lower your platelets/red cells/ make you tired all the time. depression and not wanting to admit it, Forusimide(lasix), given for fluid retention/ascites, dehydration and pain medications. Also anything that messes with your electrolyes. I’m trying gatorade myself and going to see if I can cut back on my lasix as well. There are some option you can discuss is get rehydrated every couple weeks, get medication to boost red cells, ( think it is called procrit not sure), discuss getting a transfusion, and if on lasix see if you can reduce. Also anti-depression medication. Just a few ideas to share with you and everyone else.
Jeff G.May 5, 2008 at 1:51 pm #19882carol58Member
Deb, I know exactly what you mean. People mean well, but they are always telling Charlie how good he looks…they just don’t know what to say. They seem shocked when he’s sick because he looks so good. They just don’t get it and I hope they never have to ’cause it’s hard and I wouldn’t wish it on anyone. You do have to ask for help and allow people to help you. I’m sorry you went through losing some friends. Enjoy the sunny day. My heart goes out to you.
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