Feeling alone
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Wow, I don’t know what to say. Can’t image one saying you have a tumor and then it doesn’t show up for oncologist. Seems like you need more opinions but also your husband doesn’t want to pursue. I wish you the best. It sounds like your husband is accepting his path and dosn’t want to fight? Is this the case? If you had catscan and bloodwork, maybe you can send it to someone else. My husband had an ERCP for a blockage and that is when they found the tumor in his bile duct. Things went downhill from there and led to surgery. I guess if you do some research you may be able to find the doctor in your area that is most experiences with transplants or resections and “whipple” operations. That is a start to find the expert.
My husband, age 75, was diagnosed with Klatskin tumor two months ago. He turned really yellow, had blood test results all winter that looked like he is in liver failure because the numbers are so high. Our family doctor sent us to a gastroenterologist that specializes in doing ERCPs. They did an ERCP and put in a stint and that doctor diagnosed him with Klatskin tumor, gave me a poor prognosis, and and sent him to an oncologist. Since then he has had all kinds of tests and it doesn’t show up on any of them. He spends most of the time in his bedroom watching tv and doesn’t want to know about it and the doctors we’ve seen since the ERCP don’t really say anything concrete. I feel all alone and I don’t know what to think. Does anyone have a similar experience with the diagnosing?
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