Feeling anxious
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Andie,
Sorry to hear this news. Lets hope that you get some answers on Friday from your meeting with the doc as to what they can do about this. Please don’t give up hope.
Best wishes,
Gavin
It’s a no go, once again. Dad’s bilirubin is 90, up from 68 2 weeks ago. It has been exactly 8 weeks again and it has started to rise. Can’t put into words how I feel. Mom is upset and Dad is frustrated. We have appointment to see doctor Friday pm to see what they say. Seems we are never going to get to chemo at this rate. All things are going round my mind, could the stent be blocked again already? could it be an infection (but Dad feels well, no fever etc) or could the dye he had during CT scan irritated his ducts. More waiting.
Best wishes to everyone
Hi Andie
I am keeping everything crossed for your Dad, and for you and you Mum, for Thursday. It’s great that he is feeling well enough to garden…and finally we have the weather for it too !
best wishes and all my thoughts will be with you on Thursday
JemimaHi Andie,
The feelings that you have right now of anxiousness about Thursday and in general are normal, we’ve all had them. What I used to do was just try on focus on the now and not think too far ahead. Look at the good things right now, your dads bili level dropped 2 weeks ago, he is gardening, his urine is as light as it’s been and his appetite is good. I know it’s hard sometimes not to think too far out, but focusing on the present worked sort of for me.
Keeping my fingers crossed for some good news on Thursday for your dad.
Best wishes to you both,
Gavin
Andie….I wish for Thursday to be a good day. Worrying is just part of the game. Oh, how much we appreciate the predictable when ambivalence enters our lives. Keep on plugging.
Best wishes,
MarionHi Andie, just a note to let you know that when Teddy jauniced the doctor said it will take months for the tinge to leave and he was right, it did take months to be completely gone. Best of luck on Thursday!!!!
We find out Thursday if Dad can start his Chemo. We have never got to this stage and we are all feeling very anxious. Last time his bilirubin started to rise just as his chemo was about to start. The same amount of time as passed again and my Mom is convinced the same thing is going to happen. Dad is still tinged yellow but his last bilirubin results 2 weeks ago were 68, down from 143. I have told Mom that Dad will probably look yellow tinged for a while but she doesn’t think he should be.
I’ve spoken to Dad and he said he feels very well, he’s gardening today. His urine is the lightest it’s ever been and his appetite is very good. he’s not gaining much weight but I suppose that’s to be expected, at least he’s not losing any. I haven’t seen him the last few days as I haven’t been well with a cold and didn’t want to pass any germs on to him.
I’m anxious he won’t start chemo and at the same time I’m worried that if he does it will make him feel ill, also what if it doesn’t work. I know it’s out of my control and that I’m probably just having an ‘off’ day as i’m usually positive.
Thanks for listening to me, feel much better when I can write it down and get it out of my system.
Best wishes to everyone of my CC family
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