Feeling down

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Viewing 15 posts - 1 through 15 (of 37 total)
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  • #85848
    dukenukem
    Member

    Just remember, a buckeye is a seed, and ducks love to eat seeds.

    Duke

    #85847
    pfox2100
    Member

    Duke , funny thing…I live in BEAVER country. We didn’t do too hot this year, so Im with you. Gotta go for those Ducks. ;)

    #85846
    shellina
    Member

    What???? This So Cal girl says “Go Buckeyes!”

    #85845
    lainy
    Participant

    Duke, for once I agree, hoping Oregon wins as my Niece graduated from there. BUT first is Sunday morning, watching for the Packers Whupping the Cowboys!

    #85844
    dukenukem
    Member

    Try to do at least one fun thing every day. Go for a walk, talk with a friend, watch a silly movie, go to the ocean, walk a beach, watch the Ducks whup Ohio State next Monday.

    Duke

    #85843
    pfox2100
    Member

    Hi all. I am struggling to stay calm, but trying. No new word, though no one from my team seems to be too concerned. They have reminded and assured me the SECOND they feel they need to move forward with anything and provide more in depth tests, they will do so. It’s crazy how one little number has completely gone mad :) That being said, that number realistically could mean nothing. I did have it drawn on the 4th of December in Portland (where my team is/treatment/etc) and on the 18th in Corvallis where I live, and I had them draw in while I was getting my port flushed. I requested this draw on my own though my PCP. My oncologist has recommended to me to not do this anymore as far as request interim labs because I do get them drawn every 3 months and moments like this can just cause more anxiety on the patient. So they have said it could be a lab variability as they were two different labs. I will be having blood drawn and my next scan the first week in Feb. At times I can be very rational and irrational and I am aware of this. In a rational state of mind, I do realize that they are doing really what they think is best and two months in between scans and blood being drawn in my opinion is really staying on top of it and I have to remember that. My surgeons patient/scheduling coordinator has been an angel and we text on a regular basis. She is very comforting and also likes to remind me that there is team of experts that is watching my body’s every move, more than I know and if there is ever any reason for concern, they will take the appropriate next steps.
    I also saw my PCP on Monday having a lot of bloating and intermittent pain (this is nothing new, have had this all along and since surgery) he just assured me there was no fluid in my stomach and had a total normal physical abdomen exam by hand, and for me sometimes just going in and talking to him help alleviates some anxiety. So i sit and wait until Feb and try and just RELAX my body and my mind. Thanks everyone for the comments, love, and support. Hugs and blessings to you all. I think of you daily! <3

    #85842
    iowagirl
    Member

    Porter…any word yet from your doctors as to what they think about the CA 19-9 going up? I’m hoping that it is simply like Kris’s husband, Marks’s number….went up one time…and back down again. I so want this to be okay for you. Hugs and more hugs.

    Julie T.

    #85841
    kvolland
    Participant

    Porter –
    We had the same scare back in September with Mark’s, his jumped up into low triple digits but had come down significantly. We go back in February just to check labs again. I know other things can make it bounce around.
    I will keep you in my thoughts.

    KrisV

    #85840
    dukenukem
    Member

    Questions.
    Were the two samples (which gave the 15 and 65 CA19-9) measured on the same machine or at the same facility? If not, there may be some differences based on that.

    Were all other parameters in their normal range for you?

    Comment.
    CA19-9 is not a 100% indicator. If it were, initial diagnoses would be a snap. Even the Geico gecko could do it. Other things can affect it. My guess is that your onc will have you get a retest in two weeks.

    Until then, try the best you can to remain calm.

    Duke

    #85839
    lisacraine
    Participant

    Porter, praying this is nothing!
    Hugs
    Lisa

    #85838
    marions
    Moderator

    Porter……same here, thinking of you and sending tons of good wishes your way. The roller coaster ride comes along with this disease, but you have a great team of doc’s on your side.
    Hugs and more hugs,
    Marion

    #85837
    darla
    Participant

    Porter,

    I’m with Lainy. Everything crossed hoping you get good news. Update us when you can.

    Hugs,
    Darla

    #85836
    lainy
    Participant

    Porter, I am crossing everything including my eyes in hopes you hear something good! I know you will let us know as soon as you can. Wishing for the best!!!

    #85835
    pfox2100
    Member

    Well that was short lived. My PCP just called to tell me my car 19-9 spiked to 65. Its been way wnl since surgery. Bounced around during chemo. But two weeks ago it was 15. This came as a surprise. Again, waiting to get a hold of my surgeon or onc to find out if they want to do anything. I.pray it has spiked for any other reason besides a recurrence. :(

    #85834
    pfox2100
    Member

    Well that was short lived. My PCP just called to tell me my car 19-9 spiked to 65. Its been way wnl since surgery. Bounced around during chemo. But two weeks ago it was 15. This came as a surprise. Again, waiting to get a hold of my surgeon or onc to find out if they want to do anything. I.pray it has spiked for any other reason besides a recurrence. :(

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