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    I know just what your talking about you don’t want to have to talk about money at a time like this but the reality of it is bills have to be paid, groceries have to bought and if your house is like ours we have a 11 year old son who is eating us out of house and home!

    We went to the ADRC-Aging and Disability Resource Center-I’m assuming every state and county has one of these. They can tell about Energy Assist. which could help pay for your fuel and electric bills, also they had info about food to. One of the websites they had was and thru here you might beable to get free cell phone service. Most of the sites they gave was based on your income. The one she did give us was called Cancer Coalition-don’t know if each state has this org.-thru them they give cancer patients $1000.00 a year in gift cards to pay for travel expenses and or food. This one was not based on income just on having cancer.

    Hope maybe this will help, the stress of worrying about money eats away at us just like the cancer does to our loved ones.





    Cancer treatment can be financially toxic, and as you note, there are many costs such as travel which are in addition to treatment costs.

    JH has reduced cost options for long term parking.  It looks like you may be able to get the parking cost down to about $6 per day using JH parking discount stamps.

    Please check the IRS publication on medical expense deductions.  Some parking and travel costs may be deductible if you qualify.  This may help defray your costs.  (In 2018 this may no longer be possible as some versions of the tax reform bill would end deductibility of medical expenses.)

    It is also possible to look for ways to avoid or reduce travel once surgery is over and you are back at home, via having follow up care coordinated between JH and your local doctors

    Please let us know how your appointments go and if surgery is decided.  This board is a welcoming community possessing a wealth of information and experience on this rare cancer.

    Regards, Mary


    I was wondering if this cancer has affected anyone else financially?

    We have to travel 3 hours away from our home to get treatment. If they decide on the surgery we will be at the hospital more than likely three weeks they told us. Parking is $20 a day plus the cost of my meals. I plan on staying in his room with him they said that was okay.

    His work temporary disability will barely cover the cost of the insurance premiums living off our savings. I know it sounds insensitive to talk about money at a time like this but I was just wondering if anyone else has encountered this situation. Thank you.

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