First post past frustrated to desperate
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Dear Muchelle, welcome to the best place to be for CC support and also to a most remarkable family. Take a deep breath and know that you are not alone as we are all here for you. Sometimes CC is very difficult to diagnose and with that said please make sure that where ever hubby is being seen that they are very experienced as all hospitals are not experienced in CC. It is the most important thing to be with an experienced ONC and treatment center! Do you mind telling us where he is being treated. PLEASE let the ONC know that he is in pain and it is increasing and at that time ask him if he has treated CC. There are pain relievers and no one should have to suffer. Don’t worry about going to a diff. ONC as all you have to do is take copies of all LABS and tests with you. It is better to get to the right place than to let this go further without the proper diagnosis and treatment. If he is not eating try Carnation Instant Breakfast which can be substituted for each meal or added to it. My Teddy loved the vanilla and I would blend in a banana. It has all the needed nutrients. You never know how strong you are until “strong” is the only choice you have! Below is a site you may find helpful and please keep us updated as we truly care.
http://cholangiocarcinoma.org/newly-dx/My husband was diagnosed with bile duct cancer in December of 2015. We are still undergoing tests to see if he is eligible for a resection. In the mean time his pain is increasing he is loosing more and more weight and nothing has been decided..no treatments yet. I am scared witless afraid if we change doctors this process will start all over again
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