First time posting
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- This topic has 50 replies, 14 voices, and was last updated 5 years, 6 months ago by bglass.
September 23, 2017 at 9:32 pm #94789spokanemomSpectator
Thank you so much for sharing your experiences with us. I am glad to hear that you are trying to enjoy each day that your husband is able to enjoy his food.
VictoriaSeptember 20, 2017 at 8:26 pm #94790positivitySpectator
I am glad that you have a whole new perspective. When we experience this journey with a loved one, our perspective changes at each stage no matter how tough the situation. Enjoying your time together is what matters most. Thank you for joining this community.September 20, 2017 at 6:46 pm #94791mbachiniModerator
I too, am so very sorry to hear of this news. I love that you are living each day to the fullest and like it is a vacation……..a lesson for all, that time is so precious. I am happy he is enjoying eating again. Thank you for sharing with us and know that you both will be in my thoughts and prayers.
All my best,
MelindaSeptember 20, 2017 at 5:34 am #94794gavinModerator
I too am sorry to hear that things have reached this stage with your husband. I hope that you both can make the most of this time and try and enjoy every moment if you can. Please know that we are all here for you as well.
GavinSeptember 20, 2017 at 4:51 am #94793debnorcalModerator
I am so sorry that your husband’s journey has taken this course. I’m sure your positive attitude, and being surrounded by his loved ones, is making these days easier for your dear husband.
Hugs to you.
DebbieSeptember 19, 2017 at 3:50 pm #94792darlaSpectator
I too am sorry to hear all of this but your positive attitude will help you get through this. Enjoy every day. My thoughts and prayers are with you both.
DarlaSeptember 19, 2017 at 12:39 pm #94795hopeseekerSpectator
So very sorry you are having to deal with this, Hopeful, but glad to hear that your husbands quality of life has improved some since chemo has been stoped. You both are in my thoughts and prayers.
Your outlook is so positive even in the midst of great hardship. Thank you for that.
HopeseekerSeptember 19, 2017 at 12:30 pm #94796
Just thought I would post an update. My husband is now on Hospice care. Our last visit with our oncologist was a difficult one. Scans showed that the massive tumor in and on his liver grew, also the mets in lungs and lymph nodes grew. Two very strong chemo regimens over a 6 month time frame has not accomplished what we were hoping for. His ascites has become a problem so he had to get pleurX catheter which has helped. He has it drained about every other day. Since discontinuing chemo in August his quality of life has improved. He is still skeletal looking since he has no muscle mass left, but his appetite has improved and he can actually eat a little bit more than before. We know he won’t be getting any muscle mass back because the cancer is so aggressive and using all of his nutrients to feed itself, but at least he is able to enjoy his food. We have been enjoying visits with family and friends and trying to live each day like we’re in vacation! Someone once said “having a positive outlook may not add years to your life, but it surely will add life to your years!” We are trying to enjoy each day, for we know that he could turn the corner and decline very quickly. We were told he has about two months left.August 24, 2017 at 12:19 pm #94838bglassModerator
It was good to hear your husband experienced some relief due to the paracentesis. Sending thoughts and prayers your way for continued good days.
Regards, MaryAugust 24, 2017 at 2:47 am #94837
Paracentisis today. My husband had about 15 pounds of fluid (7liters) drained today. He’s feels so much better and even ate a little supper even though he couldn’t taste it. That brought on nausea, but we have meds for that…..we’re just thankful that he was able to eat some food.
It was a good day!!
HopefulAugust 23, 2017 at 12:09 am #94836mbachiniModerator
Sending you much love, hugs and prayers for both you and your husband. I am glad that Karen’s postings were helpful to you. Hoping the paracentisis provides for some comfort. We are thankful for you!
MelindaAugust 22, 2017 at 7:42 pm #94835
Thank you, Karen for the informative links. I read through them and yes, while they are sensitive in nature, it helped me to understand more of my husbands condition.
We had a consultation today with our oncologist and he canceled today’s chemo treatment. He talked to us about the cachexia and what is happening. He ordered paracentisis for tomorrow, another scan to be scheduled after Labor Day and then another consultation on sept. 12.
It almost sounds like our oncologist is leaning toward no more treatment but won’t make that decision until after scan results. The Y90 procedure is now off the table because of the progression of the cachexia. My husband is literally skin and bones except for his huge stomach. He eats almost nothing, sleeps a lot, is having double vision and some occasional confusion.
We are trying to stay positive. We’ll be having lots of visits with family and try to enjoy each day that is given to us.
I’m thankful for this support group!!
HopefulAugust 2, 2017 at 8:38 pm #94834karendSpectator
First off….HAPPY ANNIVERSARY!!!!
Melinda contacted me regarding information on nutrition and cachexia. I can email you the articles directly, but I did go ahead and post links to articles in the nutrition section. They are informative, but rather sensitive in nature.
-KarenAugust 2, 2017 at 5:32 pm #94833gavinModerator
Happy anniversary Hopeful!!! Hoping that you both have a great day and can enjoy it with your family.
GavinAugust 2, 2017 at 12:37 pm #94832hopeseekerSpectator
Happy 42nd ANNIVERSARY! What a milestone, and I hope it’s a great day for you and your husband.
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