For my brother ..
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Formybrotherjed…..what type of cholangiocarcinoma does your brother have? Is it called “hilar” or perhihal” or intraheptic disease?
Do you know the stage of his cancer?
As mentioned by tiah, your brother’s young age works much in his favor.Hugs
MarionDear Rosina,
Welcome to this board. I was very fortunate to find this board when my mother was diagnosed with cholangiocarcinoma back in August 2015. This disease can be particularly isolating because it is so uncommon, and furthermore being in a smaller country like Australia means there is even less of us going through this that can offer advice and support.
I have read of many patients who have undergone chemo due to being inoperable and then become a candidate for surgery after some shrinkage with chemo, so keep this in mind as a motivator for your brother during his chemo! Hopefully as he is young and (hopefully) in good health otherwise he will tolerate chemo quite well. May I ask what chemo regimen he is having? My mum is currently having gem/cis (she has also completed FOLFIRINOX in the past) and because she is still considered ‘young’ (50 years old) and she was in very good health otherwise she has tolerated all her chemo very well other than the occasional mild side effect. Please keep this in mind also
All the best for your brother and your family at this difficult time. Please keep us updated!
Dear Rosina, welcome to our remarkable family and the best place to be for CC. I am sorry your brother is having to take this CC journey, a trip no one would ask for! Others have been told no surgery but after chemo were able to proceed in that direction. The best thing I can advise is to also seek another opinion. We have quite a few members from Australia and I am sure they will be chiming in to help. Please keep us updated on your dear brother and I am sending the best of everything across the water to your family.
Hi everyone,
My 33 year old brother in Western Australia has just been diagnosed with bile duct cancer. Have been told it’s incurable (can’t be surgically removed)
He had terrible jaundice and after two months of false diagnoses we were told The horrible news.
He starts chemo next Tuesday and my family and I would love to hear any advice or similar experiences or positive outcomes from this rare disease.
Thanks for reading.
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