From Sophie

Viewing 13 posts - 1 through 13 (of 13 total)
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  • #33848
    marions
    Moderator

    Sophie….the stool softeners and laxatives can be taken via suppository. And, is there a way of crushing the other pills and disguising the taste with juice or yogurt? Now, if we could just find an answer to the mouth sores. Someone must have experience with this.
    I am sending all my best wishes your way,
    Marion

    #33847
    tiapatty
    Member

    Sophie,

    I am really glad you popped in on us, I have been missing everyone’s favorite grandma! I am sure that little dumpling gets cuter every day and I for one completely understand your absence, cute babies trump everything! Visit when you feel like it, we will always be here.

    I am sorry nothing seems to be working for the mouth sores and I don’t have any suggestions to offer.

    Patty

    #33846
    jclegg
    Member

    Sophie,

    I am overjoyed to see your posting on here, and, like the others, so sorry to hear all that you are going through. We are with you, and praying for you. You are such a special lady, and so very brave.

    Love,

    Joyce C.

    #33845
    irenea
    Member

    Hi Sophie:

    So very glad to hear from you. But am so unhappy with all the current horrors.

    I continue to send you my good thoughts and good wishes. We all have to learn just to find those moments that make it worth going on, don’t we?

    Love,
    Irene

    #33844
    gavin
    Moderator

    Hi Sophie,

    I am sorry to hear that you are going through such a rough time right now. I will keep you in my thoughts and hope that you find something that works for your mouth sores and am sending you loads of positive thoughts and support.

    My best wishes to you.

    Gavin

    #33843
    kristin
    Member

    Dear Sophie,

    We all missed you and have been very concerned about you. It was so good to hear from you. We’re all here to support you in any way we can, so please visit with us whenever you can.

    Sending prayers and healing wishes–

    Kristin

    #33842
    lisa
    Member

    Sophie, it was so good to hear from you, but so sad to hear about all that you have suffered. I will continue to keep you in my prayers as I do all my cancer buddies. I hope that you find something to help the mouth sores.

    You are very brave.

    #33841
    lainy
    Member

    Sophie, Hi!!!!!!!!!!!! What a wonderful and blessed surprise, just the kind we love. We are sorry to hear all you are going through. What immense courage you have, must be that little baby whom I believe is almost 1 year old? I must way you have the most wonderful niece in Hollie. God is going to be very good to her and she obviously thinks you are a treasure and that is wonderful. You know you can vent here any time so holler all you want. Gee, it was so good to see you again! You sure were the dose we all needed. Love & Hugs

    #33840
    lalupes
    Participant

    How lovely to meet you, Sophie – I’ve heard so much about you & I know you’ve been missed whilst you’ve been away from the boards. I’m so sorry you’re feeling so rough, but a good ol’ wallow does a power of good & I’m glad you’re back.

    I hope some of the suggestions will help ease your mouth sores.

    All the best
    Julia

    #33839
    hollie
    Member

    I pulled up the site just now like I do most days and about creid when I saw my Aunt’s name. I am glad you came on and posted today. People care so much and hope you know it. Love you Auntie!! Hollie

    #33838
    devoncat
    Member

    Sophie,
    First, let me tell you how excited I was when I saw your name to a post. I am very, very happy you are here again. Now, I am not so excited you are in pain and are uncomfortable. Darla is right, come on in have a seat and vent to your fingers get numb from the typing. We are here to support. Sometimes that mean listening and sometimes that means finding and offering suggestions. I will pass on raw garlic and listerine as helpful advice. Now my Polish friend would have you believe vodka is the cure, but I will leave that up to you. Please take care Sophie and dont be a stranger.

    Kris

    #33837
    darla
    Participant

    Sophie,

    It was good to hear from you. Wow what you are all going through. Wallow all you want. You have earned the right, but come on and vent if it helps. Hang in there and know we are all thinking of you.

    Love & Hugs,
    Darla

    #3006
    sophie
    Member

    You have all been so loving and compassionate, and I feel selfish for not not posting. One post Hollie read to me from Kris was that if I was not posting because I had no strength, that was one thing, but if I was not posting because I was depressed and didn’t want to bring everyone else down, that was another, and I should vent. (somewhere along that line of thought) We’re here to listen to each other.

    my condition as of now – I have had ascites for over a year and I have had weekly ultrasound paracenteses for over a year, never missing a week. It varies from 5.3 to 7.8 liters but normally is around mid 6 liters. So I gain 10 to 12 pounds of ascites in my belly; it’s drained, and I lose it, and it starts coming back right away. This has severely lowered my potassium and albumin, but the doctor doesn’t want to give me an IV because he says it will go right back to the ascites in my belly. I stuck with every chemo he wanted to try, but around April it was just too much being sick with the ascites and and chemo so I stopped the chemo. My immune system is now so compromised. I take 3 potassium pills a day, 2 hydrochlorothiazide pills with a furosemide pill, Ambien to sleep, stool softener. Then the oral yeast infection came and all the mouth sores. Magic Mouth Wash didn’t work; the diflucan didn’t work and then he added 5 ascyclovir per day- then all that together – nothing is working. My neighbor bought me the biotene toothpaste, some acidophilus pills and some yogurt with live cultures. I’m rinsing with salt water a few times a day. I can’t get it all down not mentioning stool softeners and laxatives. Doctor Ending with there is nothing more we can do for your mouth. This is long, I know. The potassium pills and the ascyclovir pills are big enough to put a saddle on and ride. I’m at a loss and wallowing.
    I truly, truly appreciate your encouragement and support and pray for you each night.

    Love,
    Sophie

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