From Spain, help!
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Jose, you have done and are doing all the right things. Please don’t listen to “life expectency” as we were not born with expiration dates on the bottom of our feet. We have MANY here who have out lived what the Doctors predicted. I alway say we try to remain optimistically realistic. Please keep us updated as we truly care.
Thank you very much for your quick reply. It was touching, to be honest, to know that there are people here that could support and understand us in this horrible hell that we are going through. At first she was diagnosed in the National Health. We contacted to Anderson Clinic in Madrid sending them the information (they did not see her but just check all records, tests, etc that she had taken in the hospital). They considered that palliative treatment was the only option. We sent her to Clinica Universitaria de Navarra, which seems to be a very reputed clinic in cancer treatment in Spain. They said that operation is not possible. She received already one quemo session. Doctor even told us a life expectancy of 6 months or 1 year. She does not know the total truth. We think that being positive with her might help. Other cases of patients with short life expectancy finally lived longer. I’d like to read here cases that might give us hope altough we know that her situation is critical but I cannot just think that this is the end and there is nothing we can do. I think: ok, lets imagine that quemo reduces tumor masses; lets imagine that radio is feasible… at least to keep thetumor under control for a longer period…Also we heard about a person with a metastasis cholangiocarcioma in Madrid who was operated and survived… hope, hope, we need hope. Thank you,
Dear Jose, welcome to our extraordinary family but so sorry you had to find us. Your English was just fine. My first question would be if it is possible to seek out another opinion just to be sure of the diagnosis and treatment plan? We always recommend 2nd and 3rd opinions. Please know that there is always hope. I cannot guide you on chemo as my husband did not have it but I know we have many who will be able to help you. A most important thing is to be in a place that is a major cancer Hospital that has treated CC many times. Please be strong for your Sister. When you first get this diagnosis it is like being hit with a baseball bat in the stomach but I promise once a game plan is set in place the fright turns to fight. For now Via con Dios and know that we all really care and that you will be getting many more replies. Hang in, be strong!
Dear friends,
My name is Jose, my sister, 49 years old has been diagnosed with an intra cholangiocarcinma. The cancer is metastasic in liver and, lymphatic nodes therefore doctors consider her case is not operable (I hope this is English) or tractable. They advised us just palliative quemo which is devastating. I cannot accept this. I cant believe there is no cure for such a young and wonderful person. I have read and seen in papers and information in many places that talk about radio-embolization with little balls inserted in the tumor. My question is: is there any hope? any hope that quemo really burn the rumor and she could get any treatment not just palliative?. We are desperated Desperated. Is there any case of a survival with metastasic cholagnocarcinoma? Any help?
Thank you
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