Front row tickets to hell

Discussion Board Forums Introductions! Front row tickets to hell

Viewing 15 posts - 1 through 15 (of 48 total)
  • Author
    Posts
  • #58478
    ronidinkes
    Member

    I am here for you whenever you need someone to talk to.
    Sending much love your way.
    Hugs,
    Roni
    443-394-6163
    or
    ronidinkes@yahoo.com

    #58477
    ronidinkes
    Member

    Just checking in to see how you are doing?

    We are here if you need to talk, or vent.

    My mother passed March 17, 2012 8:43pm. I find myself in shock maybe disbelief at this time. I was with her, held her hand, played her favorite music etc. It is these quiet moments I will cherish.

    If you need me I am here: ronidinkes@yahoo.com

    Love,
    Roni

    #58476
    marions
    Moderator

    Sugarplum…. The Cholangiocarcinoma Foundation is always here to help and will aid and assist you in any way possible should you be interested in establishing a CC organization in Australia. Each country differs in regards to regulations and requirements therefore, at this time; it proves not feasible for us to open satellite foundations globally. But we strongly encourage motivated people to do so. Gladly we will pass on everything learned, mail brochures, and make contact with the medical community (if so possible.)

    The sheer number of CC affected people worldwide will allow us to become a powerful force within the research community and others.

    Hugs,
    Marion

    #58475
    mlepp0416
    Participant

    I’m so sorry to hear about your dad’s passing. He is in peace now. Words cannot express. My heart goes out to your family.

    Hugs,
    Margaret

    #58474

    We ended up in the oncology ward of a small local hospital and it was wonderful. They had a hospice attached but it was really too late to move him to it. He died in a beautiful room with a large window looking out on the bushland.
    The funeral was truly beautiful and attended by about 300 people.
    We have now made a donation of the proceeds from a collection box at his funeral to the following cancer research centre: Chris O’Brien Lifehouse. Which was being built when he was at hospital across the street (when we still had hope).
    It is a shame he won’t get to see it when it is built. We were truly amazed to see how much money was collected from the people who attended his funeral.
    I can’t wait to see it finished. I may start doing art again to see if I can auction some of the canvases off to raise some more money for it.
    When I miss my Dad I just look in the mirror and I can still see him.

    #58473
    cherbourg
    Participant

    Dear SugarPlumFairy,

    So sorry you had to join this roller coaster. Tomorrow April 3, will mark three years since I diagnosed my Mom’s cancer. She lived almost exactly one year from diagnosis.

    You are experiencing the most insidious part of this monster of a disease and that is the Anticipatory grief. I know it’s hard but “live in the moment” is one of the best bits of advice I can give. Make memories. One of the things I miss most is the sound of my Mom’s voice. I would love to have one of those Hallmark books with the sound of her voice reading it.

    Hospice was a godsend to us…especially when you believe it’s about LIVING with cancer. They can offer amazing help, equipment and services.

    Take care, stay strong and remember we are all here for you.

    Hugs,
    Pam

    #58472
    amy
    Participant

    Sugarplumfairy,
    I can understand exactly how you feel. Nobody wnts those seats! Hope strength and courage are what you need to dig deep for. Watching my husband struggle through is not easy. Be strong for your Dad and never give up hope. Too many people are relying on you. Prayers are with you and your Dad, and your family too~Amy

    #58471
    chrissy
    Participant

    Kerryn,

    I am so very sorry your Dad lost his battle. My deepest sympathies. I know exactly how you feel as countless others do on this site. Keep your memories close to your heart, and that way he is always there. I think abut my Mom every minute of every day. It is a very strange world when one of your parents are no longer in it with you.
    Take care,

    Christine

    #58470
    deb_
    Participant

    Kerryn,

    I’m very sorry for your tragic loss. This monstrous disease has broken my heart too.

    I too hope to spread the word about this type of cancer as it certainly needs more awareness.

    **Hugs**

    Deb x

    #58469
    peggyp
    Member

    Kerryn,

    Please accept my sincere condolences in the loss of your Dad. He is at peace now and I’m sure he’ll be watching over you and your family. I lost my Dad a little over a year ago, and I try to visualize the good times we had and forget the memories of his illness. It seems like you are going to be very busy with your plans of making people more aware of CC. Busy is good because it doesn’t leave you much time to dwell on what might have been. I know your Dad must have been very proud of you, and I can also tell that your Dad was very special to you. Prayers coming your way, PeggyP

    #58468

    Dear everyone
    I do intend to keep visiting this site.
    There is not enough focus on this type of cancer.
    I feel that my journey with this has only just begun.
    We have started by asking our friends and family that in lieu of flowers people donate to an Australian liver cancer foundation.
    Second step is to buy the wonderful nurses and doctors at RPA Sydney a coffee machine.
    Third step is to start campaigning. I was told not many people campaign for more focus on this disease because there are few survivors. Fewer survivors than breast or prostate. That’s ok because I feel like I am carrying Dad in me and that is how he now survives.
    Kerryn

    #58467
    pcl1029
    Member

    Hi,
    Truly sorry for your loss, I know how you feel, I just back from my sister-in-law’s hospice care facility and will go to her funeral this coming Saturday.
    She died as the result of organ failure due to CCA. And by coincidence , I am also a CCA patient . So I understand what you had been through.
    Whether life is fair or not, I have no control over it, I, like most other patients ,try to live one day at a time, try my best to learn about this disease and hopefully can be of value for finding a better treatment plan for all the CCA patients. In that way Your father will not have died in vain. You provided info.
    For your father’ disease and it helped us to look into the case, and compare to other patients’ data. So your father did contribute to help our cause to find a better solution for attacking this disease. You should be proud of yourself .
    God bless.

    #58466
    Randi
    Participant

    Kerryn,

    I am so sorry for the loss of your dear Dad. I hope that the wonderful memories that you have your Dad soon replace the sadness you are feeling now.

    Take Care,
    -Randi-

    #58465
    lalupes
    Participant

    Dear Kerryn

    I’m so sorry. Please keep visiting and let us support you.

    My best to you and your family.

    Julia

    #58464
    mlepp0416
    Participant

    Awww Kerryn:
    This is not what I anticipated at all. I was hoping for a better outcome. I feel your pain. I know that words cannot express or help what you are going through. I recently went through the same thing when my husband passed from CC.

    My thoughts and prayers and love are coming to you and your family!

    Hugs,
    Margaret

Viewing 15 posts - 1 through 15 (of 48 total)
  • You must be logged in to reply to this topic.