Fulfox – has it worked for you?
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- This topic has 17 replies, 8 voices, and was last updated 12 years, 11 months ago by pamela.
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December 30, 2011 at 3:54 am #49936pamelaSpectator
Mike- So happy for you. Awesome news.
-Pam
December 29, 2011 at 9:08 pm #49935marionsModeratorMike…Incredible, encouraging, uplifting and the perfect way to end the year 2011.
All my best wishes,
MarionDecember 29, 2011 at 8:16 pm #49934gavinModeratorHi Mike,
Thanks for sharing this, this is great news indeed!!! The best Christmas present indeed and a great end to the year! Looking forward to hearing more good news from you in 2012!
Best wishes,
Gavin
December 29, 2011 at 7:33 pm #49933lainySpectatorMike we LOVE the good news! Not just a great Christmas present but what a way to start the new year!!! CONGRATULATIONS!
December 29, 2011 at 7:18 pm #49932linda-wifeSpectatorLatest update: had another scan yesterday. Main tumor shrank by 2cm, some of the lesions in the right side of my liver have disappeared. Read the full report from the Dr that she emailed my wife today & found out that my portal vein involvement has shrank as well……WHAT A CHRISTMAS PRESENT!!!!
Mike
October 31, 2011 at 12:04 pm #49931gavinModeratorHi Mike,
Thanks for sharing your news with us all here. No growth and stability is good news! And your liver function news is also good to hear as well! Hoping for the good news to continue for you and looking forward to hearing more from you. Please let us know how everything goes.
Best wishes,
Gavin
October 31, 2011 at 1:07 am #49927marionsModeratorMike….stable has taken on a new meaning when dealing with this cancer. Good news all the way around. Thanks for sharing.
All my best wishes,
MarionOctober 30, 2011 at 5:21 pm #49930lainySpectatorGood, good, good news, Mike. You may be on to something here!! Please keep us posted, you know we care.
October 30, 2011 at 2:14 pm #49929linda-wifeSpectatorWell got the results from our scan. No shrinkage, but no growth either. Tumor markers have dropped again and blood values are in normal range. Liver function is good……maybe on the way to gaining some ground. No growth is good since first Dr gave me 3 months back in April.
Mike
October 10, 2011 at 12:55 pm #49928linda-wifeSpectatorWe have also started on some suppliments which include the following: Vite E, Beta Carotene, Curcumin ( active ingrednt in Tumeric), Fish oils. For those that do not now what Fulfox is it contains the following regimen of drugs: Oxaliplatin, 5FU and levoleucovorin. We had started on Gem Cis and had virtually no side effects but as others have noted our CA19-9 jumped while local lymphnodes apeard to respond it appearded as though that found in the liver did not. We have had one scan since on the current regimen which documented stable disease. During the last month our CA19-9 dropped dramaticly ( this is also the time frame we started these supplements). Best regards,
LindaOctober 2, 2011 at 11:40 pm #49926marionsModeratorMike…. Often times a switch to a different chemotherapy protocol shows the kind of results you are experiencing. This is fantastic news. Can’t wait for your update
All my best wishes,
MarionOctober 2, 2011 at 7:14 pm #49925lainySpectatorMike, no growth is excellent and suspecting shrinkage even more excellent. Pleae do keep us posted on your progress and much good uck!
October 2, 2011 at 4:41 pm #49924linda-wifeSpectatorI started on Gem/Cis and experienced tumor growth. We changed to Folfox in July. My scan at the end of August showed no change in tumor from June (stopped the growth). My CA19-9 has dropped dramatically since July & we are expecting tumor shinkage when I get my next scan on Oct 24th. My liver function has returned & I have not taken any pain medication in over a month. I will update after my end of month scan, but it seems to be working.
Mike
May 17, 2011 at 4:09 am #49923ca_paulSpectatorHi,
My brother was on the GEMZAR-cisplatin regimen since his diagnosis of intrahepatic CC on 4/13. After 1 round, his CA19-9 results came back at 24000 vs 17000 before the start of chemo.
He feels good and has minimal side effects during the chemo, but from the CA19-9 results, it seems to not be working.
His doctor will take schedule an immediate CT scan and will switch to GTX next.
He also mentioned Folfox too, so we’re also interested in response that others may have from this relatively different chemo cocktail.Thanks for your inputs.
April 28, 2011 at 6:06 am #49922nancy246SpectatorHi Jane, Sorry I do not have any information on Fulfox, but you are the 2nd person to ask in the last couple of days which I find interesting. Maybe it is something they are using more? Let us know what you find out about it. Wishing you and your mom success. Nancy
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