GEM/CIS, now imrt, then what?
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- This topic has 15 replies, 9 voices, and was last updated 10 years, 10 months ago by hisprazr.
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January 14, 2014 at 6:04 pm #77602hisprazrMember
Mark is on lasix and spironolactone for the ascites. It seems to be working very very slowly. At least he can eat now and is hydrating. He will have blood tests this week to check all his numbers regarding the diuretics and any chemical issues. I am surprised that the swelling has not gone down more but the doctor said they don’t want to diurese too quickly. They changed a pain med today that he had been taking for pain in the left thigh also today and just called for us to come to the hospital to have new labs drawn. So, we will have a better picture of the current status of things here in a couple hours.
January 8, 2014 at 6:19 am #77601pcl1029MemberHi,
AsCites in liver patient, esp. On cirrhosis liver patient, account for the majority of patient who develop ascites. The rest is caused by malignancy .
Portal vein hypertension is one of the major reason for develop ascites in liver patient.
GI OR internist specialist can have a better ideas to care about ascites with regard to use diuretics to get rid of the swelling and edema,but also should provide and address the hydration issue thru monitor of electrolytes ,BUN/CREATININE; plasma and total protein etc.God bless.
January 8, 2014 at 5:52 am #77600pak001SpectatorMy mom received IMRT and chemotherapy at the same time. Chemo: gemzar only. IMRT 28 sessions. Gemzar for 7 months. My mom decided to stop gemzar after 7 months because she was feeling so ill. Initially, she received clear scans(CT and PET scan) after treatments, but then became ill only one month later because of occluded bile ducts. She then required stents. Her tumor was also in the caudate lobe. No surgery due to involvement of portal vein.
Everyone responds differently. Unfortunately, mom initially received great news after treatment was done, but then only one month later, complications started.January 7, 2014 at 8:21 am #77599marionsModeratorHoping for the same, dear hisprazr. Please keep us posted and tons of good wishes are heading your way.
Hugs,
MarionJanuary 7, 2014 at 7:57 am #77598hisprazrMemberWe go to MDA again tomorrow. Mark is scheduled for another Catscan to compare to prior ones taken to evaluate what is causing the fluid build up in his abdomen. They believe it is probably just the radiation but want to check and make sure it isn’t some type of clot affecting the portal vein. We are certainly hoping that it is just the body reacting to the surgery for the spacer and the immediate radiation behind it 10 days later.
Fluid pills don’t seem to be doing much to decrease the distention but he is feeling better for the most part.
January 7, 2014 at 12:30 am #77597bananaf1shSpectatorThanks, Heather! This is very helpful. I hope your visit to Houston has been good. You and Gordon are in my prayers.
Caroline
January 5, 2014 at 1:06 am #77596heatherMemberCaroline,
Sorry it has taken me so long to reply, we have been in Houston(MDA)
Folfori hasnt been too bad…he has been on it since september and the tumor is shrinking. It makes him very fatigued, some nausea and it does drop the platlets. sometimes he has needed neutripen shots. Yes Gem/cis was a year ago, it is always the first attack on this cancer. Also ask about the Tarceva pill to go with it, with some people it does have good results. Gordons ins at the time would not approve it.
Anytime,
Heather
January 1, 2014 at 3:08 pm #77595bananaf1shSpectatorHeather,
Sorry I can’t answer your question, but would you mind telling me more about Gordon’s experience with FOLFORI? My mom was on gem/cis chemo for about two months, but after her latest scan, her doctors want her to switch to FOLFORI. How long was Gordon on it? Was he also on gem/cis previously?
Thanks in advance, and happy new year!
Caroline
January 1, 2014 at 2:52 am #77594heatherMembermy husband is also Dr javles patient and dr cranes as of today. We will see Dr. Aloia for the spacer to be put in. Dr. Crane said this is comparble to surgury, the outcome that is. What do yall think. They said IMRT will be better for his tumor. Gordons tumor was 8.8 and now it is 6.2…from Chemo. The chemo that worked was FOLFORI. But DR. J said he fears there is more cancer elsewhere because of how high his tumor markers are. His liver is a little damaged with a tiny amount of ascities. He was diagnosed Nov 27 2012 and he is still working and doing okay….I to would like to see miraculous heaing but I believe in Gods will and am thankful for all the time we have, Gordon is 45.
December 31, 2013 at 10:27 pm #77593hisprazrMemberDanna0325,
My husband is seeing Dr Desari as his primary oncologist and Dr. Crane for radiation. He completed the IMRT on Dec 16th and is still very fatigued and abdomen extremely distended. They gave fluid pills today and want to give it a week before they see him again. If that didn’t change anything they will do another scan to make sure there is no other problem going on besides that beast of a tumor irritated and dieing.December 13, 2013 at 4:36 am #77592pfox2100MemberHey thanks Jason for the clarification.
December 13, 2013 at 4:29 am #77591jscottMemberIMRT and Y-90 are different radiation treatments.
IMRT is an external beam radiation treatment.
Y-90 is an internal radiation treatment where beads imbued with yttrium-90 are released in the artery feeding the liver. Since cancer cells are heavy blood “drinkers,” the beads lodge in the tumors and the Y-90 radiation kills them.
The different radiation therapies are very confusing and use a LOT of acronyms!
This link is a very good overview of the different radiation options:
http://www.cancer.gov/cancertopics/factsheet/Therapy/radiation
Jason
December 13, 2013 at 3:45 am #77590pfox2100MemberIs the IMRT another name for y90?
December 13, 2013 at 2:43 am #77589danna0325SpectatorI too believe in miraculous healing and have strong faith. No we don’t always understand Gods way but we know that he knows what’s best.
December 13, 2013 at 2:41 am #77588danna0325SpectatorI have an appt with Dr Aloia about the spacer and proton therapy next Friday. My oncologist is Dr. Javle, who does your husband see?
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