GEM/CIS, now imrt, then what?

Discussion Board Forums General Discussion GEM/CIS, now imrt, then what?

Viewing 15 posts - 1 through 15 (of 16 total)
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  • #77602
    hisprazr
    Member

    Mark is on lasix and spironolactone for the ascites. It seems to be working very very slowly. At least he can eat now and is hydrating. He will have blood tests this week to check all his numbers regarding the diuretics and any chemical issues. I am surprised that the swelling has not gone down more but the doctor said they don’t want to diurese too quickly. They changed a pain med today that he had been taking for pain in the left thigh also today and just called for us to come to the hospital to have new labs drawn. So, we will have a better picture of the current status of things here in a couple hours.

    #77601
    pcl1029
    Member

    Hi,
    AsCites in liver patient, esp. On cirrhosis liver patient, account for the majority of patient who develop ascites. The rest is caused by malignancy .
    Portal vein hypertension is one of the major reason for develop ascites in liver patient.
    GI OR internist specialist can have a better ideas to care about ascites with regard to use diuretics to get rid of the swelling and edema,but also should provide and address the hydration issue thru monitor of electrolytes ,BUN/CREATININE; plasma and total protein etc.

    God bless.

    #77600
    pak001
    Spectator

    My mom received IMRT and chemotherapy at the same time. Chemo: gemzar only. IMRT 28 sessions. Gemzar for 7 months. My mom decided to stop gemzar after 7 months because she was feeling so ill. Initially, she received clear scans(CT and PET scan) after treatments, but then became ill only one month later because of occluded bile ducts. She then required stents. Her tumor was also in the caudate lobe. No surgery due to involvement of portal vein.
    Everyone responds differently. Unfortunately, mom initially received great news after treatment was done, but then only one month later, complications started.

    #77599
    marions
    Moderator

    Hoping for the same, dear hisprazr. Please keep us posted and tons of good wishes are heading your way.
    Hugs,
    Marion

    #77598
    hisprazr
    Member

    We go to MDA again tomorrow. Mark is scheduled for another Catscan to compare to prior ones taken to evaluate what is causing the fluid build up in his abdomen. They believe it is probably just the radiation but want to check and make sure it isn’t some type of clot affecting the portal vein. We are certainly hoping that it is just the body reacting to the surgery for the spacer and the immediate radiation behind it 10 days later.

    Fluid pills don’t seem to be doing much to decrease the distention but he is feeling better for the most part.

    #77597
    bananaf1sh
    Spectator

    Thanks, Heather! This is very helpful. I hope your visit to Houston has been good. You and Gordon are in my prayers.

    Caroline

    #77596
    heather
    Member

    Caroline,

    Sorry it has taken me so long to reply, we have been in Houston(MDA)

    Folfori hasnt been too bad…he has been on it since september and the tumor is shrinking. It makes him very fatigued, some nausea and it does drop the platlets. sometimes he has needed neutripen shots. Yes Gem/cis was a year ago, it is always the first attack on this cancer. Also ask about the Tarceva pill to go with it, with some people it does have good results. Gordons ins at the time would not approve it.

    Anytime,

    Heather

    #77595
    bananaf1sh
    Spectator

    Heather,

    Sorry I can’t answer your question, but would you mind telling me more about Gordon’s experience with FOLFORI? My mom was on gem/cis chemo for about two months, but after her latest scan, her doctors want her to switch to FOLFORI. How long was Gordon on it? Was he also on gem/cis previously?

    Thanks in advance, and happy new year!

    Caroline

    #77594
    heather
    Member

    my husband is also Dr javles patient and dr cranes as of today. We will see Dr. Aloia for the spacer to be put in. Dr. Crane said this is comparble to surgury, the outcome that is. What do yall think. They said IMRT will be better for his tumor. Gordons tumor was 8.8 and now it is 6.2…from Chemo. The chemo that worked was FOLFORI. But DR. J said he fears there is more cancer elsewhere because of how high his tumor markers are. His liver is a little damaged with a tiny amount of ascities. He was diagnosed Nov 27 2012 and he is still working and doing okay….I to would like to see miraculous heaing but I believe in Gods will and am thankful for all the time we have, Gordon is 45.

    #77593
    hisprazr
    Member

    Danna0325,
    My husband is seeing Dr Desari as his primary oncologist and Dr. Crane for radiation. He completed the IMRT on Dec 16th and is still very fatigued and abdomen extremely distended. They gave fluid pills today and want to give it a week before they see him again. If that didn’t change anything they will do another scan to make sure there is no other problem going on besides that beast of a tumor irritated and dieing.

    #77592
    pfox2100
    Member

    Hey thanks Jason for the clarification. :)

    #77591
    jscott
    Member

    IMRT and Y-90 are different radiation treatments.

    IMRT is an external beam radiation treatment.

    Y-90 is an internal radiation treatment where beads imbued with yttrium-90 are released in the artery feeding the liver. Since cancer cells are heavy blood “drinkers,” the beads lodge in the tumors and the Y-90 radiation kills them.

    The different radiation therapies are very confusing and use a LOT of acronyms!

    This link is a very good overview of the different radiation options:

    http://www.cancer.gov/cancertopics/factsheet/Therapy/radiation

    Jason

    #77590
    pfox2100
    Member

    Is the IMRT another name for y90?

    #77589
    danna0325
    Spectator

    I too believe in miraculous healing and have strong faith. No we don’t always understand Gods way but we know that he knows what’s best.

    #77588
    danna0325
    Spectator

    I have an appt with Dr Aloia about the spacer and proton therapy next Friday. My oncologist is Dr. Javle, who does your husband see?

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