December 30, 2006 at 11:26 pm #14819kris1214Participant
You mentioned in one of your posts about reviews you have heard about different hospitals and cancer centers.
Can you give me that info?? We live in Columbus, Ohio and have gone to the James Cancer Hospital at Ohio State. My husband was just diagnosed with CC and we aren’t sure if there is a better place for him. It’s so hard to decide on the best place for treatment.
Any info you have would be greatly appreciated.
Good luck to you.
KrisOctober 27, 2006 at 10:04 pm #14818
Thank You very much for the Information. I’ve read the Johnson Family Blog. Such a serene sunset and the expressions of love for Sam can be felt in this man’s heart. God Bless !
JeffOctober 27, 2006 at 8:57 pm #14817betty-johnsonParticipant
Jeff – Sam had 28 days of radiation to the liver when he was first diagnosed in 2004 followed by radio frequency ablation to the tumor. The radiation did cause some problems to the remaining healthy liver but the liver tumor actually remained unchanged for almost two years. We just could never get the mets to the lungs and chest wall under control. Of course, everybody’s body reacts in a different way.
If you want to read his history, it is under http://www.johnsonal.blogspot.com. Best of luck to you. You have a good track record – keep it going.
Betty JohnsonOctober 27, 2006 at 7:41 pm #14816
Thanks for the wish of luck. I’ve got my fingers crossed and my toes, legs, and eyes! Ha! I,m not sure if it is IMRT therapy or not. They were considering cyberknife but because mass is over 5cm they decided regular therapy targeted directly on the tumor. Normally they would not consider doing this due to mets in the lungs. However, beings I have only the one tumor mass on the liver and have been dealing with it for so long, they (Oncologist and Radiologist) decided to try it to relieve the pain and maybe because of it’s low grade and low density, I’m Hoping it will do a little more than just shrink, Who knows until you try it? I have had a couple night sweats but no temp. Just the pain because the location is right on the crown of right lobe and when ever I do anything physical It creates pressure on nerves. I was told they normally shy away from radiation of the liver as there is high risk of bleeding, or actually killing the liver due to over radiation. Pros and Cons every where. I’m going to be doing the treatments at Wesley Med Ctr, in Kansas. Actually I’m hanging out waiting for their call to set things up. As far as your Mom’s fevers, cancer and/or chemo can cause them to come and go even after the facts. I’m the weird one with temps that were sub- normal except for when I had a sinus infection. When I first started chemo I was told to keep an eye on the temp and if reached 100 to take IBPROfen 800mgs and keep checking temp. If it didn’t go down within 12 hours or if it spiked upward to go get checked out by the doc or ER. What chemo regimen is your Mom on? Is she getting treatment at a clinic or actual Cancer Center. Not that it matters, I’ve just heard of so many great reviews for certain hospitals and negative for others. Well ya got me rambling again. Ha! just kidding.
P.S. I just remembered when I went to the ER for my fever my blood work didn’t verify any reason either. It was figured out that I had a low grade sinus infection only afterI told them I was all blocked up and pressure around my eyes.October 27, 2006 at 5:28 pm #14815malliegParticipant
I wish you the best of luck with the radiation. Is the radiation going to be IMRT…(Intensity Modulated Radiation Therapy?) Where will you be receiving your radiation? Some of my Mother’s liver tumors are large and cause her a lot of pain at times. I have been doing some research on this therapy and wondering if it would help. Have you been experiencing fevers? My Mom was just in the hospital for fevers and they could not find any infections. The did a bunch of tests and could not give us a solid explanation. They just said it was because of the cancer in her liver. We are wondering why now? Considering she had the tumors for quit sometime and they have shown shrinkage.
You have been so helpful to us….just thought I would ask a few more questions : )
I hope this treatment works wonders on you!!
AlisonOctober 27, 2006 at 4:52 pm #257
CT results were overall stable with sligt decrease to one nodule in lungs. However, due to the size of tumor in liver pain has increased. Strength of loratab/act increased and will temp stop chemo and do radiation therapy on liver to decompress and alliviate pain starting next week. Normally radiation would not be an option due to the fact it’s met cc, however 7 years post radiologist going to try. Is going to be classified as palliative treatment although we are crossing fingers for more than palliative results. A new journey for me; I was not open to radiation at first but decided to give it a whirl.
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