GOD BLESS LAINEY
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- This topic has 19 replies, 16 voices, and was last updated 14 years, 1 month ago by slittle1127.
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November 15, 2010 at 1:21 am #44180slittle1127Member
Dear Lainy = Yes, Randy has nausea medicine and he takes it as needed. We have learned that for him, he needs warm food in the morning. Anything cold immediately comes back up. If we do warm food and drink, he seems to do ok. We got peach juice yesterday. He is noticeably weaker every day. He walks to the kitchen and back to bed a couple times a day. Sometimes he walks out to the car and back just to get some fresh air. He has the mood swings and yesterday was a tough one, but today he is more himself. I am adapting better to the mood swings and I certainly don’t take them personally. My 26 year old daughter mentioned yesterday that in so many ways we have already lost her dad. He isn’t the same caring, loving man we have always known. We appreciate his anger, feeling crappy, worried about leaving us, his grief over not seeing his grandbabies grow up or even start school. We feel for him in his pain, but are already grieving the man we have known and loved for so long. Love talking to you on this post. Thanks for all your support and courage. Hope T is doing well today. By the way, I made a butterscotch rum cake today that was not very sweet and it is one thing that Randy has really enjoyed. He can’t eat anything that is too sweet. Blessings, Susan
November 14, 2010 at 9:05 pm #44179linda-zSpectatorLainy,
I want to tell you how much you have impacted my life on this board, and I just can’t find the special words to do that for such a special lady. Everything that others have said are true, and more. You life me up when I get to having the pity party for myself, that I feel I just can’t stop going on. You are the most courageous person I’ve met, and to have such love that you and Teddy have, makes you both so blessed.
I wish for your continued blessing in everything that comes your way, as well as for all of us on the Board for having known you. You certainly are like my family. Keep on keeping on. My very best prayers and wishes for you and T to go as far as you can. I’m so glad that T got to go to the golf awards with the Shriners.
My love to both of you.
Linda
November 14, 2010 at 7:35 pm #44178darlaSpectatorI totally agree!
November 14, 2010 at 6:01 pm #44177cherbourgSpectatorLainy,
I echo all of the above! I hereby award you your very own halo! Wear it in pride.
As I’ve said before….Teddy chose well when he picked you!
Hugs to you both!
PamNovember 14, 2010 at 1:59 pm #44176lainySpectatorSusan, one thing caught me. Peaches is Teddy’s newer favorite snack/dessert. He no longer wants anything too sweet. Not sure about Randy but T eats better when I make comfort foods: Chicken Paprikash (stewed chix), pasta, salisbury steak and yes chicken soup, home made or Campbells. Know what? I let him eat anything he wants, why not? Is Randy taking nausea RX? T has it but honeslty he is so lucky as he rarely needs it. Odd too as his cancer is mostly in his abdomen and you can see it on the right side.
Hand strong, Susan, we will make it through this together.November 14, 2010 at 6:04 am #44175slittle1127MemberOh Lainy- Next year thanksgiving in Arizona with you and Gavin. I can’t wait. I am so glad that T was able to go to the golf tournament. I was so encouraged to see that T eats an occasional 1/2 burger or KFC. I thought maybe Randy was odd in his eating habits, but he eats those things. He is asking for more soup and cottage cheese with peaches as most other things make him nauseous now. I really think he and T are at a similar stage as you have said before. You inspire me to be better than I am alone. Thanks. Looking forward to hearing more from you and T. I appreciate Marion and Gavin as well. Blessings to all and I think it would be wonderful if the choir came over to sing for Teddy. Susan
November 13, 2010 at 11:00 pm #44174sunshinecaregiverMemberOh my, Lainy now I know why you and Teddy are so special…he is a Shriner and you are his special lady. My experience with Shriners organization has been nothing short of extraordinary. Thank you BOTH for helping those in need regardless of organization or health problem. My hats off to both of you. G
November 13, 2010 at 9:24 pm #44173lainySpectatorHi all, and again thanks so much. I am still blushing so much that I went to the Market without make-up! Teddy’s friend Tudi picked him up and all went well. He went for 1 1/2 hours and even ate 1/2 burger. Now, you guessed it he is sound asleep but watching football between nods. Honestly I cannot believe how alert he is for the amount of Morp he is taking. Tonight KFC! OR I will bring it home. Watching for you Buddie!!!
November 13, 2010 at 9:04 pm #44172gavinModeratorHi Lainy,
I know you say that you don’t take compliments well, thats fair enough, but I have to jump in here with the others and say that I completely and utterly agree 100% with what everyone has said about you!! We are all looking out for you, and if you were my quarterback, then I’d jump in front of a bus to block it for ya!
Thank you so much for letting us know how T is doing. This lunch at the golf club sounds great and I so hope that he can go. And the sing along next week also sounds great!
A virtual hug for you right now, but next year you get a real one, lots of them!
Gavin
November 13, 2010 at 6:29 pm #44171helenmorementMemberDear Lainy
The generosity of spirit you show in sharing yours and Teddy’s journey is inspirational. Your love for each other shines through your words and, by finding the good and the positive in every step of this journey, you truly help everyone …
Helen xx
November 13, 2010 at 4:29 pm #44170lisaSpectatorLainy and Teddy are an inspiration. I hope that T gets to go on his golf outing and enjoy himself. Lainy, don’t forget to take care of yourself, too.
Much love,
LisaNovember 13, 2010 at 1:23 pm #44169lainySpectatorOMG! I woke up,came to my computer and lookee what I see! Thank you all from the bottom of my heart. A little secret? Just between us? I don’t accept compliments very well, never had many of them growing up, I guess. My goodness, you make me blush. And now you know my other secret
you asked ‘who is looking out for me?’ It is all of you along with Marion and Gavin.
You all understand completely what is happening whereas others don’t. Honestly, do you remember for months how we had so many visitors? I don’t hear much from friends anymore, and am beginning to wonder if I will pick up like it used to be when this journey is over. Time will tell.
Last night we increased Teddy’s Morphine to 160 mg twice a day and the break through is now 40 – 50 mg every hour or as needed. Otherwise not much change in him. Weaker, eating a tad less, more shakey but still has the alertness for a kiss and a hug here and there. That is all I need.
Teddy is a Shriner and they have a big golf outing today. One of our friends is taking him up to the golf course just for the lunch and to see the awards given out. I sure hope he can make this, it was one of his goals. He will take his break through med and his little oxygen cart and see what happens. I hate to see him set up for what could fail as its another punch to his stomach. But what can I do. Its like sending your child off to his first day of Kindergarten! Well, maybe not, your child would not be sick.
The Hospice Social Worker came yesterday as did the Nurse and the Shower gal.
The Social Worker said he wishes I would ask for something as I have not and I said “don’t worry, one day I will call in my markers” and he laughed. We really are OK mentally, yet.
Oh cute story: The Communion Lady from Church comes 3 mornings a week. Yesterday along with her was the chior director and a Deacon. Well, the choir director told Teddy that maybe next week he would bring part of the choir and they would have a sing a long with Teddy. How cute is that?
Again I thank you all so much but really I am very selfish as my reasons for being on this Board are because of my feelings for all of you and how you all get me through this wild journey. I am feeling a big Meeting is long over due!!!!!November 13, 2010 at 12:50 pm #44168betsySpectatorI couldn’t agree more! Lainey, thanks for everything you give.
Love,
BetsyNovember 13, 2010 at 12:27 pm #44167tlsinftlMemberVirtual hug for Lainy!
November 13, 2010 at 9:31 am #44166andieSpectatorslittle1127 wrote:Yes, Lainy is all that has been shared (in my experience). I have appreciated you so much and all your encouragement and open sharing. You have been a great example to me and I appreciate you so much. Thanks to this board I feel I have another family there to support me and get me through. Thanks to Lainy, Marion, Gavin, and so many others. Blessings, SusanYou have taken the words right out of my mouth Susan, that is exactly how I feel x
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