Grandmother diagnosed last week :(
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Peggy thank you for your message. Both you and your husband are in my prayers. My grandmother has been feeling ill since Labor Day, 2011. They found a tumor on her liver and did a biopsy. She was diagnosed with cholangiocarcinoma October 27, 2011. My grandmother is turning 78 in a couple of weeks, but she is full of energy and life (although not so much after her first chemo treatment) she wants to live and is not giving up. I tell ya, I haven’t had a sound good night’s sleep since diagnosis. I wish I could trade places with her. I will not accept sitting down and doing nothing.
I am currently trying to set up appointments to get second opinions. She means so much to me, I pray everyday that God saves her. This disease is horrible. I am praying for you and your family. YOur husband sounds like a fighter. He will make it through this.
God bless you…
Hi Elsyr,
My husband was diagnosed over three years ago with Stage IV intrahepatic CC. He has always kept a positive attitude and we just take one day at a time. He is now on his third regimen of chemo cocktails and so far has tolerated each chemo with very few side effects. He gets tired very easily but he makes himself get up and go each day. We live a very hectic life as we are raising two of our grandchildren, an 8-year old boy and a just turned 14-year old girl. They are very active in sports so we stay on the go. Between God and the kids, I believe that is why John is still here. John was 55 when he was diagnosed but in very good health, otherwise. The surgeon told us that had he not been as healthy and relatively young, they probably would not have done anything. I will keep you and your grandmother in my prayers because I know how hard it is to see someone you love struggle with this disease. Sending well wishes to your grandmother and hugs to you, PeggyP
Hi Gavin. She is not in any pain but says she feels “uncomfortable” I don’t know if its just the after effects of the chemo. She was given nausea meds that she should take even if she has no nausea. It’s painful to see her like this. She’s always tired and in bed and before this nightmare, she wasn’t like this. Even though she’s 77 she’s more like 57 because she’s so full of life. I just got married 6 months ago and you should have seen her, dancing and laughing and have an amazing time and now she’s lethargic, and not herself. I know it’s because of this horrible disease, but it’s painful.
I just don’t want her to suffer.
Thank you for asking about her Gavin.
Hi Elsyr,
Yes there is a very good chance that the chemo your Gran is on in the Gem/Cis combination which is 2 different types of chemo and is now seen as the standard chemo treatment for CC and has been for a few years now. Many of the members here have been through or are undergoing that chemo right now. That is good to hear that your Gran is not in any pain right now and if she does start to feel anything like nausea from the chemo then there are many meds that she will be given to deal with this. How is she feeling today?
My best wishes to you and your Gran,
Gavin
Pam, I am deeply sorry to hear that your daughter who is so young is going through this. I’m going to pray for her. You are right there are success stories as well and I’m praying that your daughter and my grandmother and everyone else going through this will be a success story. Let’s never loose hope, amidst our grief and shock. Thank you for your kind words.
I am not alone and neither are you, we are all in this together…
Gavin, thank you so much. I will tell you this, I don’t know what type of chemo she is getting but she is getting two different types. I have the info at my mother’s house. So I will find out and post it. It’s such a crazy time. She started chemo this past Tuesday. She was there for 7 hours. She is feeling some discomfort but not in pain, thank God. She has no appetite. But she is so upbeat and so positive. She wants to fight this and she wants to live.
Sometimes educating yourself is good but it’s also bad. Is this really a death sentence? I refuse to accept it. I’m going to stick to my faith and pray like I’ve never prayed before, just don’t want her in anymore pain.
This is so hard. Thank you for being there and for your encouraging words.
Dear Elsyr,
I am sorry to hear about your grandmother. I know how you are feeling. It is like a bad dream. My daughter age 25 also has this disease. It seems like a lot that is read on here is bad but there are success stories too. Keep the faith and enjoy every minute together. It is a lot to take in but just posting on this site helps. You are not alone.Love,-Pam
Hi Elsyr,
Thank you so much for your kind words. I know that right now, your head will be spinning with everything that is going on with you and your Gran. It was only a week ago that your Gran was diagnosed and taking everything in is so hard to do. I know that when we were told of my dads diagnosis it felt like I had just been hit in the head with a baseball bat, and needless to say, my head was spinning also.
Not only are you taking in the diagnosis, you also have all of the emotional effects that comes with that. And your Gran will have gone through all manner of tests, dealing with various doctors, oncs etc and talk of this treatment or that treatment. It is such a tough time right now and I remember the stress and everything that comes with it all. I know that it might not seem like it right now, but things will calm down and then you and your Gran will come out fighting. That is something that we all have been through as well, and you will start to feel better once the fightback begins.
How is your Gran tolerating the chemo right now? I know it is early and we have a great chemo board here that will be of help to you. We have so many members here that are going through chemo and I know that they will share their experiences with you. Do you know what chemo your Gran is on, is it the Gemcitabine and Cisplatin?
I know that it can be hard to do, but please try and stay positive. You say that you need us right now, well thats just fine as we’re not going anywhere and will all be here for you. And yes, never give up hope, I like your attitude here.
My best wishes to you and your Gran,
Gavin
Marion that means so much. Thank you, really, from the bottom of my heart. I’m completely devastated right now but find comfort in the little things. God Bless…
Hi Gavin. Thank you so much for that beautiful post, it is very encouraging during a time that is so difficult. I’m sorry about your father. This horrible disease is such a nightmare. Gavin I would give anything to trade places with her. I don’t like what I have read so far. While I understand that knowledge is power, it’s very painful to read about this disease. It seems almost as if it’s an immediate death sentence. But I’m praying for a miracle, and I have hope. It’s in God’s hands now, she started chemotherapy yesterday and I’m praying that it is effective. I need you guys more than ever right now and I’m here for everyone too.
God bless you all on this site and your loved ones as well. Everyone is in my prayers. God Bless us all.
P.S. My youngest son’s name is Gavin
I will never give up hope…
Elsyr….I echo everything Gavin has said. We are in this together and we will continue to help guide, support, comfort, educate, and hug each other. Positive vibes are heading your way.
All my best wishes,
MarionHi Elsyr,
Welcome to the site. Sorry that you had to find us all here and I am sorry also to hear about your Gran. But I am glad that you have joined in with us all as you will get a ton of support and help from us all. I came here when my dad was diagnosed back in 2008 and it was the best thing that I could have done. Everyone helped me so much and I know that you will receive the same support from everyone also.
I so know what you mean when you say that you are shaken by your Grans diagnosis, I felt like that too when we got the news that my dad had this cancer and it was inoperable. And also like you, I had never heard of it before and I think that probably goes for most of us as well. I know you are feeling discouraged, but please do not give up hope. You have done the right thing here in reaching out and seeking support, and as I said, you will get loads of that. Also, seeking information is a good thing as the better informed you are the better equiped you will be in helping your Gran through this.
And please, if you have any questions then just ask away and we will do what we can to help in answering them. We are not doctors and we can’t promise to have all of the answers, but we’ll do our best. I know this is a hard time for you right now but keep coming back here. We know how you feel and what you are going through right now and we care.
My best wishes to you and your Gran,
Gavin
Marion, thank you so very much for those uplifting and kind words. My heart is just shattered to pieces. I wish I could transfer that cancer into my own body so that she can live a longer life. The thought of a life without her scares me so much, she’s all I’ve known all my life, all 38 years of it. I know my story is no different from all the others on here and I’m happy I found this foundation. I’m praying for everyone going through this devastation. Thank you and God Bless….
elsyr…like you few people ever heard of this disease before it touched their lives and always it is shocking diagnoses. Just know that you are doing everything right by staying hopeful as hope become our greatest ally in the fight against this disease. Of course, you will be your down-days, all of us do. But, we are here for each other and reaching out for support is something so important to us all. A tidal wave of good wishes is heading your way.
All my best,
Marion
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