July 20, 2020 at 7:25 am #100297bglassModerator
This is really wonderful news, thank you for letting us know how you are doing. It is especially welcome that the severe pain you were enduring has faded away. Fingers crossed that the cancer continues to shrink and disappear.
Regards, MaryJuly 19, 2020 at 3:43 pm #100296
I just got my sixth treatment. I am doing well. Found out my tumor’s largest dimension is just an inch now. The CAT scan was three weeks after my last treatment. If it keeps going at this rate, I should be cured in one or two more treatments. That doesn’t mean I will stop taking the keytruda if my doctor wants me to stay on it. I never want to go back to the pain and suffering I had. I would take 3 morphine pills in an hour for the pain. Luckily, I never got addicted to the morphine and haven’t taken one since March. Maybe it was the severe constipation that kept me from becoming an addict.June 28, 2020 at 5:51 pm #100226debnorcalModerator
I am so glad you are having such a positive response to the Keytruda! A number of our members had great response to this therapy through a two year treatment course, and no evidence of return thereafter!
DebbieJune 27, 2020 at 8:08 am #100220
Just had some great news. My doctor said my tumors reduced in size by more than 50% after 4 treatments comparing my ct scan in March and the one I just got on Monday. Of the two tumors, one is gone except for some spots. The other is just a sliver. I am confused because I thought I had one hemangioma and one cancerous tumor but as far as I am concerned, it looks like one is gone and the other is at about 1/4 the original size. Since the tumor was originally 3 inches long and 1 1/2 inches in diameter at its fattest point. So basically, it is probably going to be gone by my 8th treatment if it keeps working. My doctor said I had DMMR/MSI-H and Keytruda works really well on these types of cancers. I thank God that I have a treatment that is working really well.June 20, 2020 at 9:43 pm #100196ShortcanuckParticipant
Hi Bill and welcome. I loved reading your post, it was filled with positivity. I hope you continue to have success. I’m hearing a lot about immuno therapy for all sorts of cancer. Stay well and greetings from Canada 🇨🇦June 20, 2020 at 4:07 pm #100195bglassModerator
Welcome to our community. I am glad to hear you are doing well with Keytruda, and hope your next scan brings good news.
Did you have genomic testing to see if your cancer has treatable mutations? There is information on testing on the Cholangiocarcinoma Foundation website if of interest. Keytruda has been effective for some of our patients who have a specific mutation (MSI-high or dMMR).
I was sorry to read that your doctor was so dire in his advice to you. Our cancer is not an easy one, but many patients do have success with treatments, and it is really hard to predict what the outcome will be for any given patient.
Please let us know how it goes for you with your treatments. Regards, MaryJune 19, 2020 at 10:41 am #100190
I discovered I had a 4 inch diameter tumor August of last year. They did shrink the tumor with radiation to a 3inch by 1 and 1/2 inch tumor with radioactive seeds. Doctor said I was going to die so I decided not to do chemo but would try immuno therapy. Not sure why doctor would not give me immunotherapy because I decided to go to the Markey cancer center and that doctor said I was a prime candidate for the treatment. My friend didn’t think I would make it to Christmas but after one keytruda treatment, I stopped having to take pain pills and could eat more than just jello and crackers. I feel great. Had 4 treatments and will be getting a cat scan to see how well it is working.
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