Eli…… USA version of Wikipedia does link to The Cholangiocarcinoma Foundation:
The Cholangiocarcinoma Foundation: a resource for patients, friends, caregivers and loved ones of those affected by bile duct cancer.
For the last year I’ve been planning to expand the puny article on CC on the Swedish version of wikipedia (which is one of the few resourses that pop up when you google “gallgångscancer”). Well, It’s done, and I’m very happy with it.
Liz, that is just great on many counts, kudos to your husband!
2 days ago I met my new ONC as I am being watched for having had another rare Cancer called a GIST (size of a cantaloupe) that was removed 2 years ago. It reacts very much like CC. If you can believe me, following Teddy on that one! Anyway my GI guy has been treating me for 4 months now for ulcerated colitis. The GI keeps telling me that it is the worst case he has ever seen on someone my age. Anyhew, the ONC said, “Now you have to be very careful as U.C. can lead to other Gastro Cancers”. I hear more and more of this about U.C.
So I am making this plea: If you have any continuous stomach problems such as bloat, not being able to eat much, pain, weight loss or gain, nausea don’t attribute them to other things such as meds, stress, or feel they will pass over, PLEASE go see a Gastro Doc!!!!! Please!