Hi Bill,
Welcome to the site although I am sorry that you had to find us all. And I am sorry to hear that your younger sister is not doing too well right now. Please can you give us some more information about Janine’s condition and what treatment she has had etc. Where do you live and where was Janine diagnosed?
Marion is so right when she compares this disease to that of a rollercoaster. I was my dads carer during his battle with CC and he had many up’s and down’s along the way. I know that it’s not easy to deal with all of this, but coming here will help you as we have been through all of this. So please, keep coming back and feel free to ask a ton of questions and we will help and support you as best we can.
Best wishes to you and Janine,
Gavin