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Hey all
My brother called and is with my mum at the onc. A new growth seems to have appeared. 5FU and radiation stopped and a new chemotherapy will be started (platinum based???)
I am really beside myself now and feel that this is the beginning of the end
Cheers
IliasHi Marion
Hope you are well. Dr Zimet was a little concerned that her CA 19-9 test results have gone up. Like I said the scans looked good last week, can’t believe that somethi g in her could grow so quickly if there was nothing there last week. I asked if a CT was the same as a PET and he said that both would show if something were to there.
Ilias
Hi Anna
Thanks for your encouraging message. Yes. I agree it is so hard to see your loved ones go through so much. Take care and I hope you and your mum have continued success.
Ilias
Ilias,
I hope your mom is feeling better. I totally understand what you and your mom are going thru.
My 72 year old mom was diagnosed one year ago. She too went through 6 weeks of radiation. While receiving radiation, she received Gemzar chemotherapy once a week. After radiation was completed, she continued to receive Gemzar for 5 more months. Originally it was scheduled for total of 6 months of Gemzar, but because it was so hard on her body, my mom decided to stop the chemo one month early. I guess it depends on the individual how much they can tolerate chemotherapy. But it was very tough on my mom.
But, I must tell you, there is hope. My mom was not able to receive surgery because the location of the tumor, too close to the portal vein. But, by the grace of God, her PET scan one month ago showed no activity where the tumor is, therefore, MD states she responded to the treatments well.
She goes for another scan in 3 months. We continue to pray that she remains stable, that the tumor does not return.
It’s very hard to see your mom in pain, I very much know what you’re going through and so do all of the wonderful people on this site.
I hope your mom responds to the treatments, keep praying. I know it sounds cliche, but prayer works.Anna
At the Epworth in Richmond now. Dr Zimet wants mum to have a CT. Her tumor markers are elevated. Mum only had a CT last week and all good. Do tumor markers normally increase for no reason. Has this happened to anybody else?
So confused.
Ilias
Dear Ilias, what good news to wake up to this side of the World! We will take the “good” and just enjoy it! Best of luck on Monday with Mum’s Doctor appointment and please do keep us posted.
Ilias…fantastic news. Is she also increasing her food intake? Keep the good news coming.
Hugs,
MarionHey all
I don’t know if it is the steroids or the lower dose of 5 Fu, but you would think mum never had this disease. She is feeling the best she has ever felt since she was diagnosedTake Care
IliasHey all
Mum’s scans have come back and the oncologist has confirmed no obstruction. I guess this is good news.
Anyway, due to the amount of weight mum has lost, the oncologist has prescribed steroids/cortisone. As I work and find it difficult to be present with her at all appointments, I do not know why she has been prescribed this medication. I take it that it might give her more of an apetite??? They have also reduced the amount of 5FU due to the sores on her lips and ulcers in her mouth and on her tongue.
Both mum and dad are Greek and find it difficult to understand fully. I will be taking her to her next appointment on Monday. I will keep you all posted.
Cheers
IliasIlias…Biotene makes an artificial saliva product. I believe it comes in spray form also. Several of our members have found relieve with mouth moisturizers and I hope for their input on this issue also.
In the meantime know that I am thinking of you and your Mom and that I am sending a tidal wave of good wishes her way. Please keep us posted…we care.
Hugs,
Marion
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