Discussion Board Forums Introductions! Hello all…I’ve been following but now am joining!

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  • #52599
    marions
    Moderator

    Sdaigre…a warm welcome from me also. Cathy’s story is absolutely remarkeable and cannot be told often enough. Additionally I am enclosing a few links from others also having undergone a successful transplant.
    Good luck and all my best wishes,
    Marion
    http://www.caringbridge.org/visit/scottgallaway
    http://kimkircher.com/
    http://www.caringbridge.org/visit/jhoneycutt
    http://www.bypolarbear.com/

    #52598
    jathy1125
    Participant

    Dear SDAIGRE-Welcome and like all have said sorry you had to find us. I am a CC survivor, thanks to a liver transpalnt. I know you made reference to a Kathy story or post so if it was mine I am sooo glad it gave HOPE or if it wasn’t please read mine at thetelegrah.com under christmas miracle. Also my FB page (Catherine Sims Dunnagan) has another Dr. Chapman CC transplant story.
    I am alive because of Dr. William Chapman, he is so much more than just a great doctor. I have been told when you contact his office he will take or return your call personally. When my hepatic artery burst most of the transplant team voted to call it and he vetoed all of them, he wouldn’t give up. If you look on this post for Wayne Parson postings you will find more testimonial about him as a man and a doctor. I think you owe it to you and your husband to contact him.
    Please feel free to contact me if I can help.
    Lots of prayers and HOPE-Cathy

    #52596
    sdaigre
    Member

    Thank you for your welcome. Pam, I am so sorry about your dad. Was he seeing Dr. McKee in OS? He is who diagnosed my husband.

    #52595
    pam
    Member

    Good Morning, interesting to know you are from the MS Gulf Coast. I am from Ocean Springs, MS and have recently moved to GA. I miss home but am adjusting to my new life. My dad passed away from cc Nov. 2010. He did not have a long battle. You are doing a great job! I hope your husband can have a liver transplant. Good luck to you all.

    #52597
    lainy
    Member

    Dear SDAIGRE, welcome to our wonderful family where you will find the most caring and couragous people in the world. You and your husband are doing everything exactly right but please make sure you are totally comfortable before picking a Hospital for transplant. I have a hard time making a decision if I have any doubt at all and usually listen to my gut feelings. I am sure you will hear from more members today with many more welcomes to come. Best of luck and please keep us posted.

    #5615
    sdaigre
    Member

    Good Morning, this site has been a wonderful source for me and I thank you all. My husband was diagnosed in November of 2010 and is being treated at MD Anderson by Dr. Javle. As his CC is quite advanced and not resectable, his treatment has consisted of numerous stents and he has finished up 13 rounds of gemzar/cisplatin. He is doing amazingly well. I am a huge fan of Dr. Servan-Schreibers book, Anti Cancer A New Way of Life. We eat well and believe in integrative medicine. Javle has recommended him to Methodist Hospital here in Houston for a Liver Transplant. We are seeing Dr. Butler for radiation and in the process of meeting with the transplant team for further testing. They feel he is an excellent candidate. All of this had been set up for August and I stopped it until we had more questions answered. Hate to say it but I am not very happy with Methodist. Horrible communication does not instill much confidence. I did read one person’s post who also had issues with Methodist and that is what prompted me to join. We are blessed in that our grown children both live close to the medical district here in Houston. My husband can live here quite comfortably as he has 5 wks worth of radiation (along with Xeloda). We live on the Miss. Gulf Coast and I can travel for appointments. Have thought about St. Louis after hearing Kathy’s story and also Mayo in Rochester but Houston does work taking travel, work, kids, dogs all into the picture. Thank you for being here and sharing information. This is quite the journey and knowing that there are so many folks out there that are as brave as my husband is comforting.

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