Hello Everyone

Discussion Board Forums Introductions! Hello Everyone

Viewing 15 posts - 1 through 15 (of 15 total)
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  • #50089
    gavin
    Moderator

    Hi Mari,

    Welcome to the site. Sorry that you had to find us and I am sorry also to hear about your brother. But I am glad that you have joined us here as you have come to the right place, and you will get a ton of support and help from everyone here. Please, feel free to ask any questions at all and we will all do what we can to help in answering them. And also feel free to vent away as much as you want. We know how you feel and what you are going through right now.

    Lainy is right in that your first post could easily get lost here due to te number of postsings, so please if you could could you repost under the “Introductions” thread as that way more people will see it and you will get more responses.

    Have your brothers doctors stopped giving him the chemo due to his bile duct being blocked? From what you have posted, it sounds like that is the case. And that is the reason that my dad could not start his chemo either. He was diagnosed in 2008 and his jaundice was the first sign. He hgad a metal stent inserted to unblock the bile duct and get the bile to flow again and this helped the jaundice clear up. But in 2009 the jaundice came back before he was due to start the chemo as his bile duct was blocked again. That meant that he could not have the chemo as once the chemo drugs were in his body they would not flow out again as the duct was blocked.

    I am sure that others will be along soon and that you will get more responses also. We are all here for you.

    My best wishes to you and your brother,

    Gavin

    #50088
    lainy
    Spectator

    Dear Mari, welcome to our wonderful family. I am sorry to hear about your brother and being so far away does make it so much more difficult. When one doctor cannot seem to help we always recommend seeking out another opinion. Where is your brother being treated? I don’t believe I have ever heard of not being able to stent. I want you to be able to get more answers but am afraid this posting will get lost along this longer thread. Can you please re post under Introductions? Just copy this one over to that File. I am hoping to get you some more help here.

    #50087
    mari0311
    Spectator

    Hello everyone…

    My brother was diagnosed with CC almost 2 years ago. He has been doing well after receiving his radiation and chemo until recently when he started to bloat and turn yellow. They could no longer give him his treatments as his bile duct is blocked and can not put a drain as the hole/s will not have the catheter fit. I truly do not understand this, but if any of you do, and can heed any advise, or consolation, this would truly be appreciated. It has been difficult for me these past few days and pretty devastating as I live in the states and he is in Asia. Until they can fix the leak, then they can resume treatments. I am new, yes, but I don’t know whom to run to or at least vent out how I feel. Thank you for having this forum for people affected by CC.

    Sincerely,

    Mari

    #50086
    marions
    Moderator

    Welcome to you also.

    Best,
    Marion

    #50085
    sultana12
    Member

    welcome……….

    Cordialement,
    ecole centrale de sant

    #50084
    marions
    Moderator

    pkcorc…..Congratulations to the great response your wife is having to the treatment. We love it when the CA 19=9’s tumble.
    All my best wishes,
    Marion

    #50083
    lbfn501
    Spectator

    Hello pkcorc30,
    How is she now? We’re very sorry to hear that. And we’re hoping and praying always that she will be okay soon. God bless you and your family. By the way, thanks for sharing with us. More power to you!

    Regards,
    lbfn501

    #50082
    slittle1127
    Member

    Dear Pk – Thanks for the update. Good news is so welcome. Keep us up to date. We’re thinking of you. Blessings, Susan

    #50081
    lainy
    Spectator

    PKCORC that is one big YIPPEE report. Keep them coming and thank you!

    #50080
    pkcorc30
    Member

    Update:
    My wife’s third chemo treatment at a local cancer center was yesterday May 04, she will be getting an IV port but the good news was that the CA19 marker had already started to drop after the first dose. Dr. states that the fact that she is still able to work most days shows she is handling the side effects very well.

    My prayers and hope for everyone,
    pkcorc30

    #50079
    lainy
    Spectator

    Dear Parruiz, Welcome to our wonderful family but I am so very sorry about your Mother. I believe that Mother’s really never leave their children and she is with you daily in your hearts and minds. Please accepts my prayers to your family.
    Your Mother, through your memories
    Will never leave you.
    You will feel her tender care from now on
    As a warm serenity in your heart.
    Hoping you always feel the encouragement
    Of her love, and hold in memory
    All the happy times you spent together.

    #50078
    paruiz
    Spectator

    My mother died from CC 8/31/10 after having been diagnosed only 5 months prior. Felt a need to log onto this site. Checked it out right after her diagnosis for information and remembered reading everyones comments. Her death was so sudden we didn’t really have time to process what had happened. Hospice was there and was a tremendous help. She was able to die at home with her famly at her side. What a gift that was. I miss our daily phone calls. I believe her soul is with Jesus. Some day a reunion. Thank you.

    #50077
    lainy
    Spectator

    Dear pkcorc30, welcome to our wonderful family. It sounds like everything is under control and your wife is at one of the best places for CC. Please keep us updated on her progress and know that you have come to the best place for support.

    #50076
    nur1954
    Spectator

    pkcorc30 – Welcome to the site and good thoughts are with you and your wife…..it sounds like she is in good hands. We are always here for questions/answers, support, rants or rages. This is a wonderful forum for anyone dealing with “cc”. – Nancy

    #5085
    pkcorc30
    Member

    My wife was diagnosed by Mayo with Stage III intrahepatic CC with a few small spots in the liver. She is 46. MD Anderson has Gemc., Cisp., every two weeks, and a tarceva pill daily. Two chemo sessions so far. Our thoughts and prayers are with you all.

    pkcorc30

Viewing 15 posts - 1 through 15 (of 15 total)
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