Hello everyone

Thanks a lot, Lainy. I hope you’re quickly and well recovering after your operation, all the best for you.

The picture I’ve got was scanned from older pictures we had in the albums, I have always loved it, I’m uploading it. Mum and dad seem to be so happy in the pic, they have always been happy and caring.

Dear supportive people on this site,

Thank you all for your support and kind words. I know CC is a terrible desease but I also know that indifference of doctors is worse than any cancer.

From my colleague whose brother has leukemia I found out I can demand an internet patien’s card, the one she’s got – it means you get the password, sign the agreement and can see all the descriptions doctors hasve made and are making online. Weird no one in the hospital told me about.

when I opened my dad’s case I saw the possible diagnosis made first – T2-3, Nx, MO hilar CC. Type 2 in Bismuth-Corlette classification with involvement of vena portea. The consilium suggested resection of bile ducts. When dad was opened up, it turned out it was type 4 according to Bismuth-corlette classification, as far as I got, inoperable, might be even from the results of the scan. Still, hepatectomy as well as hepaticojejunostomy were performed followed by huge complications of bile leakage. Also, were were lied about clear margin while hystological research suggested there were traces of cancer at the margin of resection, both bile ducts were cancerous. T2N1M0 G2 adenocarcinoma was the final diagnosis.

The worst happened when my dad started having a local infection inside and biloma that kept getting worse. Naturally, his state was getting worse too. We kept asking for help and were assured some professors had a look and decided not to do anything while other doctors suggested drainage. when dad’s drain was replaced, the bile didn’t leak out and then this biloma appeared, all they had to do was drainage in another place first but no one pid attention though he had chills and felt sick.

When we went to the hospital to demand for more help with my sis, we met a doctor who was very arrogant but after my firm and arrogant demand he moved his lazy ass and phoned another doctor to come for echoscopy.

My dad was getting worse and finally when the ‘gods’ decided to take care, they diagnosed biliary peritonitis and dad was reoperated, relaparotomy showed the necrosis of the part of the liver where this biloma appeared, they could not identify the anastomosis, so external bile fistula was formed in case my dad survives. They washed his belly, took out parts of necrotic liver and put 3 drains.

We were rudely told to take all dad’s things from the ward and get out. I burst into hysterical cry while my sister could not even make a move.

Deep septic shock followed and we were told he was in critical condition. This condition keeps going on for a week now.

ICU doctors are brilliant but we don’t need their effort. If my dad wakes up, he’ll live with external bile leakage, more operations might follow, also pain and realisation that he is a complelely disabled person…Honestly, I’ll feel relieved when he rests in peace and I wish God takes him to this meadow I keep seeing in my dreams. But if he wakes up, he won’t be left alone, we’ll surround him with love, care. I don’t think he’d be happy to wake up to die a few months later but if this happens it’ll also be God’s will.

People, do not make the mistakes I’ve made – never trust doctors, check them, I was too naive and believed things were great, best doctors take care….and the person kept getting worse at their presence when they refused to help.

Of course, I’ll make this case public – complaints, journlists to interview the guilty will follow later. Not because I wish to but because I have to warn others. I won’t sue them – our system never finds a doctor to be to blame but I’ll find the ways to warn the society to beware of such indifference that kills.

Please, pray for my dad to go to that great meadow I’ve seen him walking on. This life is too cruel for him already. Now he doesn’t feel pain. We keep visiting him, we talk to him but it is heartbreaking and devastating.

Before the relaparotomy my dad kept asking me to bring him his other shoes to go home as the ones he went to hospital in became too warm for spring. But he won’t need any shoes going to the place he is on the road to.

I’ve never imagined I can be so strong. How can I post a picture of my mum and dad which was taken years ago but which really indicates how much in love they were?

I won’t stop coming back to this site because I wish to share my story, to comfort others and to learn to carry on with life. we’ll all finally meet, even those doctors, acting like gods, will go to that place one day – if I were them, I’d never look at the living person as if he was already dead, I’d show respect.

I believe we have lots of great doctors who are great people just it happened so we havent met them in this situation.

I keep waiting for the news, now, we cannot be told anything good. All I want is not to see my dad suffering…I was assured he doesn’t suffer now.