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- This topic has 91 replies, 12 voices, and was last updated 9 years, 7 months ago by gavin.
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April 22, 2015 at 1:42 pm #87756ice-teaMember
Hi again!
Whenever I go back here, I always find very clever and comforting words, thanks a lot for that!
My dad is already in a post-operation ward, he can talk, even started walking little by little! Great news for today and those elevated enzymes are getting better they say, so the decided not to keep him in IC any longer.
Lainy, I’ll write all the questions I wish to ask the surgeon, what a good piece of advice.
Pat, I have already started telling my dad how we’ll take care of him when he gets back home. I made him be happy about my son’s whom he loves to bits bright achievements at school, we talked about such things and I hope it helps him to heal quicker.
Father says he doesn’t feel any pain but it’s because they give him medicine to control it. We’ve also bought a special belt to put on the belly – it is meant to be used after operations.
I have a very bad feature to think of negative outcomes instead of being happy about today’s results but am learning to become more optimistic. Father is optimistic. I’m sure just me and my sister know of all possible outcomes but we will just give Pat as an example or others who are fighters and survivors. Dad knows many of you already, he even told the doctor that I’d found the site.
My dear friends, you are already known here in Lithuania as a great support team, as great survivors, fighters. Our thoughts are also with you, your close people. My sister couldn’t help admiring Duke’s thoughts, she read a few stories here too. she asks me to report things to you before I visit her and mum and I wished to do it myself.
stay strong too and I’ll try to learn from you, guys. It’s never late to do so. Lainy, feel free to use humour, no need to be sorry for that, your posts are great, humour is always necessary and your spirit is like that of a warrior’s, I admire you all, wonderful people here on this site.
Thank you from us all.
April 22, 2015 at 11:55 am #87755herculesModeratorAiste, try to remain strong, sounds like mom and dad need you and your strength. When I was post op I did not know about liver enzymes and other details, I think the doctor doesn’t want to complicate your mind with too many details, Just simply focus on healing and talk about what you all will do when the beautiful summer weather comes, try to avoid shop talk til the dust settles as they say, fill his mind with hopeful thoughts of what he wants to do after he gets better. Think of something you all can do as a family together and this will give his mind proper direction, talk about favorite things you have done and try to get his thoughts out of that hospital bed, I bet a well chosen topic can get all your minds off negative thoughts, for now the goal is to heal up and go home. Stay positive, we are pulling for you too, Pat
April 22, 2015 at 5:28 am #87754lainySpectatorHi Aiste! If I may suggest that you make a list of questions and you want answers that you can understand. I know a lot of them talk DOCTOR which we don’t understand. You have a right to know what kind of CC, what will his future treatment be, what Stage he is, what did they do and etc.
Best of luck. Hey, just tackle them like a football player, you may get in trouble but I am sure they will listen. (Sorry a little humor here) Let us know what happens.April 22, 2015 at 5:01 am #87753ice-teaMemberGood morning from Lithuania,
A quick update on my dad – still stable, but liver enzymes are higher they say but they were abnormal before the operation as well. I’ll be able to say more when my sister comes back after talking with the doctors. Some things make me mad – we, being in such hard position, must run and catch the doctors who are not very talkative. I’ve read people here know what type of CC they have, we are not told much, even if my sister is a doctor and asks them to speak in all possible medical terms. I’m much more aggressive in general than she is, so when I go to see my dad tomorrow, I’ll try to catch the doctors who seem to be running away from us. I know this don’t change things nd I know they’re busy but all I wish to know is more detail, now I know that it’s CC and that’s it.
Won’t hide – I keep thinking about all possible options – positive, negative like post operation troubles then possible recurrence, etc…But I keep remaining calm and positive. Need to work, take care of my son, mum and sure dad.
All the best for you all!
Aiste
April 21, 2015 at 3:36 pm #87752lainySpectatorDear Aiste, good news again! Teddy was kept in IC for 2 days and usually it is just to keep a better watch on the patient. When I came to the hospital the 2nd day they had him sitting up. When Mom sees him sitting for the first time I think that will help. Stable is good, like Darla said. Stay strong!
April 21, 2015 at 12:36 pm #87751darlaSpectatorAiste,
Stable sounds good. I’m sure mom will appreciate you being there for her too. Update us on dad’s condition when you can.
Hugs,
DarlaApril 21, 2015 at 8:31 am #87750ice-teaMemberDear friends,
We’ve called the IC unit again and we were told dad is in a stable position. He will be kept there for the whole day and then it will depend on his state. We’ll see.
Thank you all for your wonderful words of support, positive thoughts, pieces of advice sent to me.
Am going to visit mum soon as she is in a very gloomy mood and keeps crying non stop.
hear from you all soon, I’ll also keep you updated, hugs
Aiste
April 21, 2015 at 12:09 am #87749darlaSpectatorAiste,
Thank you for your kind words. When something like this happens we all learn to live a new kind of normal.
I am glad things have gone well for your dad. Please let us know how he is doing. Hoping things will just continue to improve for him.
Hugs,
DarlaApril 20, 2015 at 8:19 pm #87748herculesModeratorAiste, sounds like everything has gone perfectly so far, let’s hope he’s comfortable til he see’s you, I will hope and pray for his continued success, Pat
April 20, 2015 at 7:59 pm #87747iowagirlMemberAiste…..fantastic news about your dad. Thanks for letting us all know. Julie T.
April 20, 2015 at 7:53 pm #87746marionsModeratorIce Tea…..I too am trilled to hear of the positive outcome of the surgery and wish for a speedy recovery. In addition to all the wonderful responses already received I wanted to mention for your Dad to gently hold a pillow against the abdomen while coughing. He will be asked to frequently clear his lungs and the pillow helps with the discomfort of doing so.
Hugs,
MarionApril 20, 2015 at 7:39 pm #87745ice-teaMembermbachini wrote:Aiste,Welcome to this site, I am so glad you found it, and I am so glad it is helpful to you! There are some amazing people here. I just wanted you to know that I am sending good thoughts and prayers your way for a successful surgery today for your father, and a speedy recovery. Keep up the good attitude, stay positive and just take it all day by day. You sound like an amazing daughter and I am sure your father is very grateful to have you by his side. Sending hugs your way!
MelindaFirst, sorry as seems I missed your post, Melinda. I’m very happy to hear from another CC survivor and thanks for the good thoughts and prayers you’re sending! I’m sending mine back to you and all the people on this site.
Dear friends ( I feel like calling you all like this already) now an update on my dad’s state – we’ve called the IC unit and the doctor told us he can breath on his own already and that he is fine as much as a person after such an operation can be.
Thanks everyone for wonderful words of support, I feel very important here and you are becoming very important to me.
April 20, 2015 at 6:02 pm #87736gavinModeratorHi Aiste,
Thanks for letting us know how your dads surgery went and from what you say it sounds like it went well, excellent news!! As Lainy says, the recovery will take time and I know that you will be at your dads side throughout this and I know that he will need that and appreciate you being there for him too.
As to these people around you who are being so negative about everything and making you mad, try not to let them get to you if you can! You have enough on your plate to deal with right now and don’t have energy to waste on them! Stay strong Aiste and keep letting us know how things go.
My best wishes to you and your dad,
Gavin
April 20, 2015 at 3:00 pm #87744lainySpectatorDear Aiste and DAD, YIPPEE! That is such wonderful news to wake up to. Just know that the recovery takes time from this huge surgery. The worst is over and the news is good. Get some rest now and don’t forget to take care of yourself as well.
April 20, 2015 at 1:35 pm #87743ice-teaMemberDarla wrote:Aiste,Thinking of you and your family and hoping that all goes well with the surgery and you will have much good news to report.
Hugs,
DarlaThank you, Darla. I’ve read your story too. I believe your beloved husband is in the place with no pain, no tears, no unanswered questions…Sad story but at the same time a great one – you knew each other for years and lived together for long. Ilnesses strike so unexpectedly and mess our lives. Life is a constant change – two weeks ago I was planning great trips, now I’m planning to be most helpful to my dad after the operation. When things were fine, we all enjoyed the status quo but now our status is that of changes.
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