Hello I’m new here!

Hi Hugh,

Y-90, some links for you –

http://www.cholangiocarcinoma.org/punbb/viewtopic.php?id=3259

http://www.sciencedaily.com/releases/2011/03/110328092409.htm

http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2702899/

Best wishes,

Gavin

Hi Terri and Dylan, welcome to the group.. I’m new here as well.. sorry we have to meet here.. I don’t have much information can share since I’m still learning as well… but I can share my personal feeling as a patient’s husband.

Somehow I think that’s our destiny that my wife got this type of cancer.. (that’s totally change our point of view in life and life style) and we cannot do anything to change that.. so we decided to do whatever the doctor said; surgery, chemo, RT… try our best to cure, to lower the chance of recurrence, and to make her life last as long as she could….

And on the other hand, we live everyday as the last day. tell her jokes.. make her meals (I never walk into the kitchen be4 she got this cancer)… take her for walks.. comfort her in anyway…

I still think that we are luckier than those who got in accident and never get the chance to did say or do what they want to their love ones be4 they gone… we do have the time and chance! Although it might be tough on this journey…

BTW whats Y90??

Hi, Dylan,
I am also a patient of this disease for four years now.
May I ask how old you are, I am 64 .
And if I may what is the date you had been treated by y90. One lobe or all lobes of the liver? One treatment or more than one?
And if I may, is it because of the ineffective y90 treatment that the cancer returned or the new tumor just pop up lately that you need to continue chemotherapy treatment? Dr. Buckner likes to use multiple (usually 4-5 different chemotherapy agent in small doses in the past.) he is unconventional oncologist and thinks outside the treatment when it comes to chemotherapy.
I appreciate you comment and thanks in advance.
God bless.

Dear Dylan, welcome to our extraordinary family but sorry you had to find us. My goodness you have really run the gamut and are a Super Hero. BTW both your Doctors have had great reviews on this site. Your attitude is wonderful and attitude is everything. Congratulations on being a 4 year survivor and I know down the road you will be asked lots of questions. A huge thank you to Dr. Bruckner for suggesting that you join our family. That is the biggest compliment we can get is when a Dr. suggests to a CC patient to long on to our site. WOW! I am smiling ear to ear. Please do not be a stranger now, keep us in your loop and wishing you continued success and the very best!

Hi Terri
Very sorry what you and your family is going through…. at times I wanted to scream because I was at my wits end seeing my mom suffering so much. She endured radiation, chemotherapy, one external stent, 2 internal stents, infections, IV antibiotics, sepsis, numerous ER visits, hospitalizations. To be honest I don’t know how she endured all of this for 1 and 1/2 years, because I certainly could not have. My mom left us 12 days ago, although I know she is no longer suffering, we miss her terribly.
It is ok to feel frustrated, overwhelmed, angry. This cancer robs us of our loved ones. If you feel like talking, feel free to contact me.

Anna

OKDOKEY lets get started, Terri. If it was my Mom at 81 and with the problems she has on top of the CC, honestly I would not put her through anymore, but that’s me.
Someone really has to call the shots for her now and she will need tough love, you have to reverse the Parent child role. I want to say if you get a private home thru a reptuable agency they are terriffic. Every morning the gal that ran this home dressed all the ladies up, my Mom was like her little doll, she lived to be 94! She loved Kathy, the owner. I would double check by always asking her if Kathy was still her girlfriend and she would look so lovingly at Kathy! THAT WAS MY WAY OF CHECKING IT ALL OUT. When we had to put Mom from independent living to assisted at the Retirement place she was NOT taken care of. We were paying 4400.00 a month. The private home was 2,000 a month with 3 homemade meals a day and snacks. AND the Retirement home was rated the best in AZ. Just say’in from exprience. The private home will also order in Hospice when it is time. I just want to say that when Mom’s time came, Kathy slept in her room for 3 NTS with her and fed her chipped ice. If extra expense is involved I hope your Sisters help. If Mom does not have the Dementia and pain under control many private places will not take her. So, I would make a decision either/or. Comfort is our bottom line and she definately needs to get comfortable. She is in no position to call the shots. Eiither Hospice or a Home. I know this is really hard, my goodness how do we boss our parents? But in the long run you will be doing her a favor. I would also talk to her ONC and tell him that she needs something for agitation and something more for pain. When I had Hospice come for my Teddy I had ordered a Hospital bed and set him up in the airy and bright living room. That is also where the big TV was! He was so happy there as were visitors and etc. I also had ordered a walker and a wheelchair. Perfect! So, I would start with the MEDS. Best wishes and be more kind to yourself!

TWolf, welcome to our remarkable family, what a sad ordeal, as if you don’t have enough to contend with CC alone! I don’t see how your Mom could be alone especially with Dementia. Could you find a private care home for her? My Mom was in a retirement home but then we found a private home with 2 other little ladies with Dementia. The care she got was extroadinary! And less then 1/2 the price of a Retirement home. Your Mom may also need a MED for agitation. Has the ONC talked about calling in Hospice. You can start with them way out as Mom needs to be made comfortable, she is fighting too many things.
What was her diagnosis and prognosis? Where is her CC? What age is she? Sorry for all the questions but we need to know a few things in order to better advise. Is the tumor in the back from CC? Is she on pain Meds. Lastly where is she being treated. What is Chemo going to do for her?
For the children, I would explain that Gran Mom is sick and part of the sickness is that she cannot help getting angry but that she is not angry at them.
As for your Sisters it is time for a “sit down” and be strong. Let them know you cannot handle all this with a job and 2 kids. Ask them point blank what they are going to do to help. Become the BOSS! I am sure you will get more advice here, we love to give advise! Please let us know how things are going as you move along. You have come to the best place to be.