Hello… My story!

Discussion Board Forums Introductions! Hello… My story!

Viewing 15 posts - 1 through 15 (of 20 total)
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  • #60801
    pamela
    Spectator

    Dear Joe,

    What a beautiful story. Prayers and a positive attitude have sure helped us deal with this monster. It was nice to read such an uplifting post from such a positive, inspiring person. I wish you all the best.

    -Pam

    #60800
    memphisrebel
    Spectator

    All I can say is AMEN.

    #60799
    kris00j
    Spectator

    Joe:
    What a wonderful story. I was supposed to have my resection the same day as you, but it’s been put on hold since I was still suffering from pneumonia at that time and the CT scan showed the tumor had grown. I’ve since had 4 more rounds of chemo and pray nightly that it’s working and that God lets me have that elusive resection. I had another CT scan today and hope to hear good news tomorrow.
    I am trying to put my life in God’s hands, but was not much of a church goer until a couple of years ago. I was trying to improve my life. About 6 months afterwards I was diagnosed. I haven’t yet gotten to the acceptance part. I try, but I still revert back to the “world of man” for lack of a better way of putting it.

    Anyway, thank you for the wonderful story. It brought tears to my eyes. What a great story. Prayers will go up to God that your radiation is as successful as the rest of your treatment has been.

    And Derin: Happy to see you! I was wondering about you today. Was thinkiong of sending you an email to see how you are doing.

    Hugs to both of you.

    #60798
    lainy
    Spectator

    Roni, that poem is just beautiful, thank you!

    #60797
    ronidinkes
    Member

    Dear Joe,
    Your story brings tears to my face. I believe my mother followed the same path. She took that very same walk, and followed her heart, and what g-ds path was for. She was brave and it was not a quantity to time, but a quality of time with g-ds will and guidance. G-d held her hand March 17, at 66 years of age, they went for the forever walk, and I feel her strength and love more than ever before. I am not sad, but proud to have known her for the 41 years g-d gave her to me. There is a beautiful poem one of my patient’s gave me: so I thought I would share:

    The Weaver:
    My life is but a weaving
    Between my Lord and me,
    I cannot choose the colors
    He worketh steadily.

    Oftimes he weaveth sorrow,
    And I in foolish pride
    Forget , He see the upper
    And I, the underside

    Not till the loom is silent
    And the shuttles cease to fly
    Shall God enroll the canvas
    And explain the reasons why.

    The dark threads are as needful
    In the Weaver’s skillful hand
    As the threads of gold and silver,
    In the pattern He has planned

    Author Unknown.

    Sending you love, smiles, laughter, hope, faith, and all things positive.
    Please stay in touch.

    Hugs Always,
    Roni
    Ronidinkes@yahoo.com

    #60796
    c_green
    Spectator

    This was inspiring and just plain awesome. I hope you keep adding to your story or start a blog. Thank you so much for the post, Joe.

    Will keep you in prayer,

    C

    #60795

    What a heck of a story! Thanks for sharing too! Continued success, I’m in the same boat as you with ‘adjuvant’ therapy. Chemo done, half way thru radiation as of today.

    #60794
    ronidinkes
    Member

    Joe, you have a beautiful heart and amazing spirit. Thank you so much for your words of inspiration and love. They made me smile today!
    Hugs,
    Roni
    ronidinkes@yahoo.com

    #60793
    gavin
    Moderator

    Hi Joe,

    Welcome to the site. Sorry that you had to find us all and I’m sorry to hear what you’ve been through. Glad that you joined in with us all and I know that you will get a ton of support and help from us all. And my thanks to you also for sharing your story with us all, and I am sure that you will indeed be a light here!

    Apologies for my being late to your thread here, but I just wanted to stop by and welcome you here. Looking forward to hearing more from you.

    Best wishes,

    Gavin

    #60792
    ccfighter
    Spectator

    Hey Sherry,

    As if CC was not enough… Job, Fighting insurance company, mountain of debt… But… Still Kicking Butt!!

    Attitude is everything!! For if he is with you, what can stand against you? Your courage and faith will be rewarded.

    Oh to live in a world that, when we are down, people lend a loving hand instead of a kick in the head. Where are we too turn?

    Sherry, from Ft Lauderdale… You are added to my prayer list, may the Lord Bless you and keep you during this fight, may he send just what you need just when you need it as you focus on keeping well and remove the weight of the other issues…

    Never stop believing!! Standing in Faith with you.

    #60791
    ssteiners
    Member

    Joe, thanks for your story. Faith is a strong component in this journey. I was given similar prognosis and am still kicking butt. It is a very frustrating roller coaster. I am most discouraged by the insensitivity of my insurance company as they restrict coverage to the local area. No specialists here. My platelets have been too low for 12 weeks and the docs are content to wait it out. Without my faith in God, I couldn’t handle this. But I am looking at other centers and trying to find out if any have special rates for people without proper insurance coverage. In the past 8 months I’ve lost my job, got medical bills out the ying yang and can’t pay my mortgage. But I have courage and faith. Best to you my friend. Sherry

    #60790
    mymommylife
    Spectator

    Joe, amazing story! Thanks for sharing

    #60789
    ccfighter
    Spectator

    Marion,

    I will check out the area for Blogs… Thank you for the leading.

    God bless you for your mission and dedication to this site!

    I hope I can encourage and be a light here.

    God Bless you Sister…

    Joe

    #60788
    ccfighter
    Spectator

    Hey Liz… Yes just a short trip on 55… Very close…

    My liver resection was done at the Cancer Treatment Centers of America in Zion, IL. Zion is about 5 miles south of the Wisconsin line right on the lake.

    They are fantastic… The level of care is crazy good. The level of attention to detail is over the top. My surgeon, Dr Huss spent nearly 2 hours explaining everything he was going to do, he or any doctor there has ever sugar coated anything, the shoot straight, he told me all the possible issues… I just felt so confident, friends and family asked are you scared? I said nope… I have God and a great surgeon… My recovery was nothing short of amazing too… Doctors and nurses would walk in and shake their heads in dis-belief of how fast I was healing. I would simple say, God is Good!

    I go there for treatments and I will go there for my radiation. The guest accommodations are above and beyond. Look I sound like a spokesman!! lol…

    I will be up there for 5 weeks, home on weekends for the radiation. It will cost me out of pocket, $20.00 for the room (which are super nice) and the gas to get there. All meals are covered for patients and two care givers.

    I encourage everyone I meet, if ever needed, 1. Get a second opinion. 2. Get it from CTCA.

    We should make arrangements to meet and enjoy lunch.

    God Bless you…

    Joe

    #60787
    ccfighter
    Spectator

    Dear Wilma,

    I agree… It is important to understand this is an awful disease and it is calming far to many lives. Attention and focus as well as awareness to the plight of so many is without a doubt very necessary. I wish I had the wisdom to know why some and not others. Only God knows. We are all on the bus off life and none of know when we are going to be dropped off. We can dwell in worry of when and where, or we can live each minute to the fullest.

    I listen intently to my doctors and trust them very much, but I also know they speak of what history shows, and each person is different, therefore… When I sit in my doctors office, I often feel helpless and hopeful, but in my Faith, I have found peace and confidence. Life, is so special and we want to cling to it so much sometimes we try so hard, we lose sight to enjoy what we have at this very minute. At least I know I was. What I have learned, Life promises only one thing… an End, but faith promises us forever.

    I am sorry Your husband has had such issues with his treatment, May I ask if you where offered any supplements to off set the reaction of treatment? CTCA recommended, a Glutimine Powder… Three times a day for 5 days after each treatment, a steroid pill for too days after and Lots and Lots of water!! Did I say Lots of water!! I drink almost a gallon a day… . Vit, D and Vit B2complex, Melatonin, and a couple other supplements… If they have not offered… Please ask them. I am sure they helped me so much. I take a fist full each morning and evening. If he is having sleeping issues… the Melatonin does a great job. These supplements are not covered under my insurance, however it is well worth the 150.00 a month habit. I was blessed to only have been nauseated 8 times in total, which they gave me tables for under my tongue and helped my greatly.

    I have no idea what tomorrow will bring for me, what I do know… I will live today the best I can, because tomorrow in not a promise. I pray your husband finds relief from his side effects, quality of life, means so much.

    Peace and comfort to you both!!

    Joe

Viewing 15 posts - 1 through 15 (of 20 total)
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