Discussion Board Forums Introductions! Hello, new member!!

Viewing 15 posts - 1 through 15 (of 42 total)
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  • #73520
    gavin
    Moderator

    Hi Heather,

    Glad to hear that Gordon is now home and doing well. I hope his surgery goes well and my fingers will be crossed for him for a successful surgery too! Remember please to keep us updated on how everything goes, we are here for you.

    Best wishes to you and Gordon,

    Gavin

    #73519
    heather
    Member

    Gordon is home now. Doing well, the surgery date is still August 20th. After visiting with the drs on the phone today and updating them we feel good about this surgery. Thank you guys for your thoughts and prayers.

    Heather

    #73518
    jeeyoung
    Member

    Heather,

    You husband and your family are in my thoughts today. best of luck on reducing the WBC count for Gordon. I hope that you are getting some support from your family and friends during this tyring time… keep us posted.

    Hugs,
    Jeeyoung

    #73517
    marions
    Moderator

    Heather….I would like to add to Susan’s great response that the plate thickness of a scan machine is 1cm. Hence anything below that size is not visible and that is why we are told that the true extent of the disease only can be determined by the surgeon during surgery.
    Hugs and good luck on the reduction of the white blood cells.
    Marion

    #73516
    heather
    Member

    Thank you Susan…..how is your husband doing?

    Gordon isn’t getting out of the hospital until tomorrow, his white blood cell count needs to go down a little more. I’m waiting to here from MDA if they will want to see him too, just hoping they don’t change the surgery date but understand.

    #73515
    snnle
    Member

    Hi Heather.
    When we met Dr. Aloia in March he gave my husband a 70% possibility that Le would be resectable, the 30% he will confirm with his retinal scan once he opens Le up. Le’s labs were normal with negative tumor markers. CT scans only showed the primary tumor in the bile duct. So we scheduled the surgery for April. When Dr. Aloia opened Le up, he said he could see abt 20 metastasis in the peritoneal so he had to abort the surgery after 3 hrs. He did remove the gall bladder though and said that should prevent the metastasis from spreading to the gall bladder and having the possibility of dealing with that in the future and it also helps with the chemo side effects.

    Prayers for a successful surgery for your hubby.

    Blessings,
    Susan

    #73514
    lainy
    Participant

    Heather glad to hear of the improvements and may they continue. I know this sounds rather clich√© but none of us, know what is really in there until the Surgeon goes in. Teddy’s Surgeon said the same thing before his Whipple. Oddly enough he had to abort after 4 hours as he needed to cut the head of the Pancreas to make sure the CC had not spread. He could not cut it due to the fact that the dye from the Endo leaked on the Pancreas and destroyed it to the point it could not be cut. Teddy should have been in crippling pain from this but never said a word. We had to give it 3 weeks to heal and then the real deal was done. I told him I was sorry he had to go through a rehearsal first! This shows how no one knows until they see. The Surgeon also told us that the longer he was in there the better the news. For now the good news is Gordon is coming home and I bet your son will be ecstatic too. Try to concentrate on today more than tomorrow.

    #73513
    heather
    Member

    Gordon should go home tomorrow. He is much better, he was up all night last night getting rid of the “discomfort” :) I stayed home with our little one, he had been left so much he needed me. Gordon got alot of rest at the hospital believe or not. they knew he needed and I got caught up on things here at the house and some much needed time with our son. And after sleeping I was able to think clearer. When Gordon was in the hospital for 16 days when he was diagnosed I never left the hospital, unless it was running a quick errand. I pray he stays healthy and surgery goes well. His beliruben is lowering after the stent replacement but his white blood cell level is still high. They dont seem too worried about it….

    I do have a question….I was reassured from the doctor that the surgery is 90% sure should be a success. I have seen post that maybe it happens more time than realized that they get in there and it can’t, can anyone get me advise on this?

    #73512
    marions
    Moderator

    Heather….both of you need sleep – I bet that things will be better by tomorrow.
    Hugs,
    Marion

    #73511
    lainy
    Participant

    Heather, I also hope he gets some sleep, he certainly has earned it.

    #73510
    heather
    Member

    my poor husband…..he is struggling with gas build up from the procedure and is also having pain from I guess having two procedures in two weeks. His pain is under control and he is able to rest which i have been able to work but I cant see straight anymore so the computer needs to go off!! Hoping he will get some relief tomorrow.

    #73509
    lainy
    Participant

    Heather, good, good news. I bet the little man helped too as the best RX as far as I am concerned are the children! GOOD NEWS FOR A Friday NIGHT!

    #73508
    heather
    Member

    Our little one is mucho better since he is with and was able to see his Daddy. Gordon is in sugery now to replace the stents. He has improved alot over night an today. Not much pain and his white blood cell count is normal.

    #73507
    clarem
    Participant

    Hi Heather,

    I hope the stenting goes well today for your husband and that he starts to feel better and in less pain. My sister had 2 external drains – one was put in before they bulked her liver in the run up to her resection.

    How is your little boy doing?

    #73506
    heather
    Member

    Yes he has been in pain, Im not sure what type of antibiotics but they will keep him on levaquin until surgery. They have him on hydro morphine for pain….he just pushes a button when he needs meds. He has never had this much pain with one of these infections. Tomorrow they will attempt to put new stents in with the dr we really like and we do not have to go to Houston yet. But if they have trouble the gi dr here will send him because dr vauthey wants to do the drain because of the upcoming surgery I guess. I was heading home from the hospital and got a call from my very upset 6 year old(who is staying with his Aunt) and so I had to go get him. he needs his Mommy so he will go up to the hospital tomorrow to surprise his Daddy before the procedure starts.
    So yes he is improving but will not completely be better until they get those nasty stents out and replace them. and look forward the the surgery when he wont need them at all!! Thanks so much for keeping up on your minds and in your hearts!!

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