July 10, 2013 at 8:31 pm #73501
Heather, Teddy had an exterior drain, not bad but takes some getting used too. Let me know when you know and I will give you some good hints on caring for it. I fully understand your security blanket, Charlie Brown! Why the Morphine, didn’t know he was in pain. Do you know what they are giving him? Teddy used to get these blood infections often and we found that Levaquin knocked it right out of him. That’s all he took nothing else and it worked wonderful. It’s one of the strongest there is and his ONC used to say it will kill anything that should be there! Not sure why MDA want to do an external drain instead of where Gordon is being treated. Our hospital did both kinds of drains. Please stay in close touch! Be Strong.July 10, 2013 at 8:31 pm #73500
Heather….hoping and wishing for a rapid, positive response with the anticiotics. Have you noticed any sign of improvement?
MarionJuly 10, 2013 at 8:27 pm #73499
I have been reading up on your journey!! You amaze me!! I’m so glad your doing well and you can enjoy the things u like to do!! I’m going to have my husband read your post in fact I’m trying to get him on here!! What inspiration!!!July 10, 2013 at 7:48 pm #73498
Gordon is doing ok…morphine every 3 hrs. A lot of IV antibiotics. Md Anderson called me and if they have to do a drain that comes out of the skin then it needs to be done there if he just needs stents replaced that can be done here. Hope we don’t have to go but will do whatever they say. md Anderson is like a security blanket for us!! All were doing at the hospital right now is hurry up and wait.July 10, 2013 at 11:49 am #73503bonnie5Participant
It sounds like your husband and I were diagnosed at the same time. I was hospitalized in September with jaundice and was diagnosed in November as inoperable. The tumour spread to the liver and pancreas. Cheemo and or radiation were not recommended due to my severe weight loss of 50 pounds or more. I am 49 years old and have 3 grown children. No we are not supposed to get this type of cancer. I will say I am doing very well. I am not gaining any weight but I am maintaining my weight. I feel good. I have been travelling throughout Canada to visit family and this Sunday am going on a road trip from Nova scotia to Bangor Maine on a shopping trip with friends. I live every day to the fullest and most days feel very well. Even on what some would call bad days I am just tired so I rest, watch movies and regain my energy! I hope things continue to go well for your husband be very grateful that surgery is an option for him. I have been lucky I have had no problems (knock on wood) with my stent. I had a permanent one put in in December and have had no issues as of yet. Good luck!July 10, 2013 at 6:10 am #73505
Heather…..oh these stents – can’t do without it, but problems do arise. Hopefully things will be sorted out at MD Anderson. Be safe and please keep us posted.
MarionJuly 10, 2013 at 6:01 am #73504gavinModerator
Unfortunately infections are very common with this cancer and they are something that definitely you need to keep an eye out for. A spike in temperature is a good sign of an infection and you so did the right thing in getting Gordon to the ER. Meds should help clear that up and they will certainly get to grips with this at MDA. I hope that it goes well there and please let us know how things go.
My best to you both,
GavinJuly 10, 2013 at 4:59 am #73502
His stents are infected. He’s had discomfort but his fever has been like 99. So crazy. His blood pressure was really low so they are watching him very close. He will be admitted and then they will have a plan to get him to md Anderson tomorrow. Not sure if I’m driving him or he will be transported.
Lisa I may be calling you soon….how are you doing now?July 10, 2013 at 4:46 am #73497lisacraineParticipant
Welcome to our wonderful family of loving and supportive people. I am 49 and I have had two liver resections. If you have any questions or want to talk please feel free to call me at 330-903-6868.
LisaJuly 10, 2013 at 4:15 am #73496
Heather, please stay in touch.
MarionJuly 10, 2013 at 4:05 am #73495
Heather, what was going on with Gordon that he had to go to ER. High Temperature? Pain?July 10, 2013 at 3:11 am #73494
Wow Evan that is amazing!! Well as I type this Gordon is in the er. Not sure what is wrong. He had an ercp two weeks ago. Ugh!!! So frustrating. He has been in and out of the hospital since he was diagnosed.July 9, 2013 at 9:18 pm #73493
I agree with Lainy, Evan. Your wife has become a poster child for this disease and her story brings hope to many.
MarionJuly 9, 2013 at 8:58 pm #73492
Hi Evan, so good to see your smiling face again! Better yet it’s wonderful to hear how well your wife is doing. This gives others such hope!July 9, 2013 at 8:12 pm #73491evan14Member
My wife Dawn was 47 when she was diagnosed with CC. That diagnosis was done in November of 2005. She was able to have surgery and is cancer free today. I wish you and your husband all the best in this difficult journey.
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