Help – Any suggestions?

Kris, I have no experience with this…but am sending you a huge hug. Even with your training…or maybe even more so because of it making you more aware, I know you must be so worried. I can “hear” in the words you’ve written about your husband and the saga of his illness, that he means the world to you.

Hugs…and more hugs,

Iowa Girl
Julie t.

Damn Kris, I wish I had some great words of wisdom for you. My appetite is still really poor too and my taste is off and my oncologist said it would take a few weeks. And, I’ve had more nausea since finishing chemo and radiation than I did when I was doing the chemo and radiation, which I find strange. It drives my husband crazy – he thinks I should just force myself to eat regardless of whether I’m going to throw it up or can’t stand the smell of it and I just can’t do it.

Yesterday, when I went in for my biliary tube exchange, they weighed me in front of him. 111.3. Fully dressed. Boy, did I get an earful about that.

So, I can relate in part, but I think Mark is having a much harder time with it all than me and I hate that for you both. Did he get a feeding tube? I seem to recall some discussion of that recently. Maybe this is the time to put it to use or talk to his oncologist about it to get him over this hump?

I’d be all over that medical marijuana to boost his appetite. I was really never a pot smoker in college, but I think I wouldn’t have any qualms about it as a patient. Unfortunately, it’s not legal in Texas, but I’ve had friends offer to get me some. Why doesn’t he want to try that? He’s lucky he lives somewhere he can get it.

My only experiences with super low BP were when I was getting septic from a bile drain tube infection that got into my blood stream. But, if his numbers look okay and they’ve ruled out infection, I don’t know what to tell ya.

Sending you both a virtual hug.

Kris, I don’t know what to say so just talking here from what I may be thinking. No, I don’t you are too close to the situation, Mark is your husband and you are reacting just as you should. Could it be a delayed reaction from the radiation/Chemo? The mystery is that his LABS are good so what the heck?
It is so strange that he seems to be slipping yet there is no evidence why? When was his last scan and it was good, yes? OK. how about this as I would do this for Teddy. Now I am not jumping ahead but it may be helpful to you both if the ONC called in Hospice until they can get him going again. You humanly cannot keep up like this. You know they can come for awhile and leave when you feel its ok. I would be worried too but to keep your sanity you cannot keep the pace you are keeping. What do I know? I don’t, just use my gut feelings! Thinking of you both!