Help, My mum has nonresectable CC
Discussion Board › Forums › General Discussion › Help, My mum has nonresectable CC
- This topic has 20 replies, 15 voices, and was last updated 15 years, 8 months ago by daniellemarg.
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April 12, 2009 at 11:21 pm #18693daniellemargSpectator
Dear Andy,
You and your family sound like a loving and strong group of people and your Mum had a lot to proud of. I am so, so sorry for your loss. She will always be with you and your brothers in your hearts.
DanielleApril 11, 2009 at 7:05 am #18692magicSpectatorDear Andy I also am sorry for all you have been through
JanetApril 11, 2009 at 6:39 am #18691marjoSpectatorAndy: Your mom had 3 wonderful sons who loved her and were there for her. Bless you all.
Marjo
April 9, 2009 at 10:05 pm #18690tiapattyMemberAndy,
I am sorry for your loss, your mother had a lot to be proud of.
Patty
April 8, 2009 at 6:40 pm #18689devoncatSpectatorAndy,
I am so sorry for your loss. What a beautiful thing for her to tell you. Her passing sounded peaceful and that is really the only thing we can all hope for. I pray that you remember your mother the way she was before cc.My thoughts to you and your family.
Kris
April 8, 2009 at 4:12 pm #18688lainySpectatorDear Andy, we are so very sorry to read about your Mum. She was fortunate to have you with her on this terrible journey and now she is at peace with no pain. She must have been a wonderful mother all the way and to say what she did at the end showed that the mother in her came before anything else. She will forever be in your hearts and memories. Our prayers to you and your family.
April 8, 2009 at 3:36 pm #18687ron-smithMemberAndy
I am very sorry to read about your mother. I hope you can console yourself with the fact that you had your her with you for a few extra months and that you did everything you could for her.
Kind regards
RonApril 8, 2009 at 1:00 pm #18686darlaSpectatorAndy,
I too am reading your posts for the first time. I am so sorry to hear that your Mom lost her battle with this horrid disease. She is at peace & no longer in pain. Remember that she will always be with you in your heart & memories. You and your brothers are in my thoughts & prayers.
Darla
April 8, 2009 at 10:53 am #18685roma35MemberHi Andy,
I am just reading your posts for the first time, and I just want to tell you I am sorry for your loss. You seem like wonderful loving son and your moms final words were a great reflection on you and your brothers, who clearly loved her very much.
Peace and Prayer
BarbaraApril 8, 2009 at 10:26 am #18684andytSpectatorThis is a message to JeffG, Ron Smith, Janecw, Kath, celoi, & Peter.
My mum died a few months ago now after 10 months of her cancer.
Myself and my 2 brothers were with her, and although she suffered a lot through the last few months, she passed away with great dignity and courage.
We managed to look after her at home, and she died in her own bed, in the house she loved, as we had promised her we would.
Thank you for the help and advise you gave me in my time of need.
It really was a great help.
Her last words were
” i was so lucky to have such wonderful sons”.
Thank you all, and i hope that you are all ok.
I admire you more than words could ever say.
Andy
January 31, 2008 at 11:55 am #18683ron-smithMemberDear Andy
I am so sorry that the you received such disappointing news. You are doing the right thing by speaking to the medical people and taking on board what they are advising. Good luck with your inquiries into chemo treatments. I believe that the UK health service is a bit like a small village in that everyone is very aware of who is doing what in their particular field. So keep asking about different treatments. The biggest problem we have is getting treatments that may not yet be fully approved because of budget restraints.
All the best
Ron
January 31, 2008 at 9:48 am #18682andytSpectatorHi Everyone,
Thanks for the replies celoi, and peter.
This was a second opinion, and it was much the same as the first.
The cancer is very high up, and is attached to several main portal veins from the liver, and is also in a lot of the liver.
They both said my mum would not survive the surgery as it would involve major arterial reconstruction, and also they didn’t think they could get rid of all the cancer.
Am trying to see an oncologist at ST james hospital in Leeds to see if there is any treatment at all in terms of chemo, but non has been offered so far.
I am waiting for an appointment, and every day that goes by seems like an eternity. I can’t really hassle them much more than i am already.
Thanks for listening.
Andy
January 30, 2008 at 7:32 pm #18681peterMemberSecond opinion on surgery
Second opinion on surgery
Second opinion on surgerySearch this site for Docs in UK and members with experience there.
Sorry to be abrupt. I only have a minute.
-Peter
January 30, 2008 at 1:34 pm #18680celoiSpectatorHello Andy,
I am sorry to hear about your mother. The dr’s go by statistics and if they can’t help, they let you know and give up quickly. Its very discouraging.
My father was diagnosed June 05, however, I recently found out, he told my husband the dr’s said his tumor makers were elevated about 8 years ago, but could not find the location of the cancer. It was after the 8 years, they find the location in the bile duct. So this show that it is a slow growing cancer. He tried chemo and alternative treatment there after and had a very good quality of like. He was positive. I think that is an important factor in combating the effects of this cancer.If you mother is feeling well and going on about her life as in denial as you referred to it- let her. I think a positive attitude will keep her going. My father did not sit home and wait to die as he mentioned. Let her ‘live’ and you just enjoy her and stay positive. Its hard to see our loved ones with such a ‘grim’ diagnoses. Just do what you can to help her cope.
Take care of yourself and know we are here for you and certainly understand what you are going through.
celoi- (Charlene) daughter of David Cook.
January 30, 2008 at 9:51 am #18679andytSpectatorHi Everyone,
Not great news on my mum,
Peter Lodge has said it is non operable, and there is literally nothing that can be done.
We also haven’t been offered any chemo as they think it will be to hard on my mum, as she is 78, and has already a history of heart trouble and diabetes.
All we can do now is be there for her, and try and make the time she has left as good as possible.
I can’t believe that only 6 weeks ago i was in town with her drinking coffee and talking about holidays, that seems a long time ago now.
Sorry if this is a sad message, but its how ifeel.
Thanks
Andy
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