Help – your advice needed

I have to say that we DID do a lot of research on Y 90 and I have
to say that I asked for people’s advice, help and personal stories
(of which we got the 2 or 3 you mentioned.)

Here, on this board. TWICE.

I should probably leave well enough alone but OUR HUGE
frustration with this board is that we come here seeking
advice and help and opinions from people who are going through
this…

almost each and every time I post a question, hardly anyone
answers (which of course is not very helpful)

when we ask for “real life stories”, almost no one ever answers.

We are almost always pointed in the direction of hard to understand
and complicated medical journals which are not helpful to “lay people”
like us. I’m sorry that we’re not as smart as some of you here on
this board.

Which is why we come looking for practical help–real answers
from real people fighting this cancer. And mostly I feel we
get a lot of fluff and silence. (After speaking with 4 doctors FIRST)

I truly and sincerely wish that more people, REAL PEOPLE, would
pipe in with advice, personal stories and helpful answers of
WHAT THEY EXPERIENCED.

I feel extremely frustrated that IF Y 90 is a “last resort” and
has almost all “bad outcomes” that when I asked weeks and weeks
ago, SOME ONE WOULD HAVE BEEN KIND ENOUGH OR BOLD
ENOUGH TO ANSWER MY QUESTION HONESTLY.

We come here making (LITERALLY) life and death decisions
for people we love, looking for help–and (I personally) don’t
feel like I find very many answers here.

Sorry for the vent…feeling VERY (!!) frustrated that we have now
done a “bad thing, last resort thing with almost all bad
results” on my husband….

And the one place where I could have found some real life
HELP—and no one felt obligated or like helping us BEFORE hand
when we were BEGGING for some good answers to help
make this decision.

Hi, Porter,

Yes Y-90 is the same as radioembo . the same as SIRT .
Y-90 come in with two mediums (as resins or glass particles) but the delivery method is the same. The effectiveness are basically the same .

God bless.

Hi,
I know at least Jason,Pamela and Holly have given their opinions and experiences to you based on the messages you had with them on this board.
I think they have given you the best of their experiences and knowledge .
I know Jason wrote to you in one of the message that about what he thinks about the radioembo but he also mentioned” it is not the time for his wife for having this procedure.” He did not say it without studying and asking questions. I know he did a lot of researching on this and you can do the same by reading the past members’ experiences,case by case, on this board,under section of Radiation Treatment.
God bless.

Hi,
It is the experiences and outcome of our past members who go thru radioembo as well as the medical journal articles that I read over the last couple years.

It is my choice based on the knowledge I learn so far and it does not mean radioembo not work either.,but it is not for everyone .

God bless.

Hi, Jz,

Thanks for your compliment.
As you know, there are our moderators ,nurses,cytologist,and sometimes doctors and other medical professionals will response to our members discussion board message and I am only part of the team.

Interventional radiologists(IR) and the medical articles that I read mostly agree that for intrahepatic tumors ,if the LOCATION of the tumor is not a problem, the SIZE of each tumor is <3cm and/or no more than 3-4 tumor IN NUMBERS; chemoembolization followed by RFA or microwave ablation or IRE will have the same effectiveness of resection.
For lymph nodes nearby the liver ,depends on the location and size, cryoablation or IRE can be of use to ablate the tumor without using HEAT.
BTW,I am actually testing out the above procedures for my third recurrence.
and I will let the members know exactly what I think the result is actually match what the books and experience said or not.

For lungs, RFA,IRE or microwave ablation can be used to burn off the leison ; follow up with adjuvant chemotherapy or targeted therapy and with PET scan every 3 months for confirmation of the effectiveness of the IR treatment.
Stanford is one of the best IR for 2nd opinion in the west. and I see why not to give them a try for a 2nd opinion.
Your dad is 63,the same age as me,unless he had other co-exist diseases at the same time that will affect his overall risk of having IR treatment. I do not see any problem for IR procedures;

Most of the IR procedures are outpatient procedure and can go home the same day. The only problem IR procedures are palliative in nature and not for cure.( but I have 2 successful resections and still have 3 recurrence,so resection is ONLY a POSSIBLE cure ; the recurrence rate for ICCA is 50-80%)

If they(Standford) offer your father radioembolization ; and If I were your father, I will only choose it as my last IR option.

God bless.