HER2 testing and treatment with Herceptin

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  • May 27, 2011 at 5:42 pm #50542
    kamnbelle
    Member

    Thanks so much. I couldn’t use the links, but I did search this discussion board and got a few hits. Am looking in to getting the HER2 test from a private company. A long shot, but who knows. Dad has increasing dysphagia, and trying to come up with some type of help with that at the moment.
    Again, thank you for your kind response.

    May 26, 2011 at 10:13 am #50541
    gavin
    Moderator

    Hi Kamnbelle,

    I did a search on Herceptin here on the site and came up with this –

    http://www.cholangiocarcinoma.org/punbb/search.php?search_id=1214983718

    And this for Her2 –

    http://www.cholangiocarcinoma.org/punbb/search.php?search_id=636491982

    There are not many posts here on the site about either of these but hopefully others will have more thoughts on this.

    Best wishes,

    Gavin

    May 25, 2011 at 8:55 pm #5191
    kamnbelle
    Member

    Has anyone been tested for the HER2 receptor and/or been treated with Herceptin? I have a friend whose father in law lives in Paris. He was diagnosed with cc a couple of months ago. He was tested for HER2 as a matter of course; found to be positive; and is currently being treated with Herceptin as well as other chemo. My dad went for a f/u at MDA last week, and was told that they no longer test cc patients for herceptin because it is not cost -effective and insurance companies were not paying them for it. I’m sure if it was their dad that had cc, it would be cost-effective.

    Are there any hospitals that you know of that will at least offer a HER2 test, even if it is self-pay (around $3k). HER2 testing is done on all breast and colon cancers in this country. Herceptin has dramatically changed the outcome and survival for those who are positive.

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